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Humblest greetings to you all i hope everyone is as well as they can be. My intentions here are not to promote anything especially herbal remedies. My advice is that we are in the age of information therefore anything with due diligence can be researched. One oviously has to be aware of misinformation and propaganda. MD Anderson have done testing with oleander extract. As to FDA and Big Pharma that is just too big of a topic to talk about. Off label arketing done by Big Pharma is illegal but is still practiced, fundamentally for an industry there to aid humanity (is it, isn’t it, i don’t know) puts up a big red flag for me. Just recently ive read about anti depressants being linked with a lot of unimaginable behaviours and crimes. The british Medical Joural will only allow papers to be published if all research data is provided, this is a relativley new practice, as before companies would only publish favourable outcomes to their studies regardless of whether the negative outnumbered the positive. So what im trying to say is, one must use their best judgement or rely on the best judgement of others.
My advice is to do extensive research in whatever might interest you in aiding your physical and mental health. In my fathers case he was given 6 months to live and we were blessed by having him for 7 years post diagnosis and that was without surgical or pharmaceutical intervention. I’m 35 years old now and a father of two and in my short time i think i may have learned a thing or two. Things in this world are not always what they seem. therefore when one suggests “the rigorous testing’s required for FDA approval” i’m sure there are many arguments for and against what the FDA does and how Big Pharma do there “testing”. No one person or peaople have the answer to everything in this world, so to me when one is steadfast in their opinion over something that may or not be true seems irrational. The philosophy that helped my father and my family during our difficult time is that god has given us everything we might need. I praise the doctors and care staff around my father as they all played thier parts to the fullest, in part i believe because we were informed consumers, this website was crucial. I pray for all of you, that God gives us all strength to continue.
Thankyou all for your condolences, its comforting to know that others understand what losing a loved one feels like and the words to use to help.
My father chose not to do chemo or radiation because in his opinion chemo and radiation kill healthy cells along with cancer cells. From the reading ive done most chemo drugs are carcinogens themselves and people that handle them do so with extreme caution. So someone who has cancer is treated with medicine that can cause cancer and that weakens ones immune system that appears to be contradictory. That is just my opinion though. With cholangiocarcinoma symptoms appear when the cancer is already in a late stage which is a disadvantage. my father has lived relatively well for almost seven years.
Well you can click on my name to see my posts regarding my father. My father had internal stents at first, for 6 and half years. They usually stayed open for long periods of time sometimes a year. Just this last month he had to have an internal/external drain put in. From diagnosis he retired from work, we juiced a lot of vegetables and fruit and basically nourished his body with everything it needed. However we became complacent because my father was feeling relatively well and was quite active and he stopped drinking the juices and stopped the vitamins. He did maintain a relatively healthy diet but his appetite was lower than what it had been prior to cancer. I think he was very cautious about whathe ate because he was afraid of his stents getting plugged. Stopping the juicing was a big mistake. my father only went to the hospital to get stent changes and only saw his oncologist once a year. They were a little shocked that he was still living every time they saw him. My father is 67 years old now. I have done a lot of reading, the information is out there you have to decide what is relevant and what isnt, cross check every bit of information. my belief is that God (or whoever) gave us everything we need to survive on this earth you just need to know how to use it. I feel that building ones immune system is very important. So basically lots of fresh organic fruit juices. Vitamins and mineral supplements especially the ones to protect the liver. Natural bile thinners such as lemon water and beetoot juice. Distilled water to drink, low sugar diet and only healthy fats. My father now takes digestive enzymes to help digest his food. After courses of antibiotics i give him good quality probiotics to help restore natural bacteria in his intestines. Because his bile drains to the outside (some may be draining inside) he drinks electrolyte water to replenish lost salts. It all depends on how he feels, somedays are good and some not so good. I think he is a little drained from fighting but then i put his grand kids in front of him and his will is restored. He is not afraid to die, he just doesnt want to suffer. when we first found out about his cancer we were all devestated and in shock knowing that prognosis is poor especially if surgery does not work. But now because it has been almost seven years we are all prepared (as much as one can be)
I hope this helps
Hello, sorry to hear that your father is sick and i understand how you feel. Try to stay positive and focused. My father is nearly seven years past diagnosis of klatskin tumor. Surgery for this type can be quite complicated (according to the literature and my fathers surgeon). They did try surgery on my father but said it could be fatal because the portal vein was involved, clear margins might be difficult to achieve and cancer often recurrs. My father’s oncologist said that most chemo and radiation treatments are ineffective. My father chose no to do chemo or radiation. My father has had some setbecks, but he is still with us. You need to inform yourself about every possible way you can help your father. This website is a wealth of information. May God be with you and your father. Im sending my prayers.
Case Report: Cholangiocarcinoma
A white female patient born in Jan. 25, 1962 experienced abdominal pain and weight loss. Obstructive jaundice then occurred. ERCP (endoscopic retrograde cholangiopancreatography) and CAT scan were performed a revealed a significant stricture of the common right and left hepatic ducts. A stent was implanted and the patient underwent surgery and was found to have a small cicatrising mass at the hilum which involved the port vein posterially with adjacent metastatic lymph nodes. Biopsies confirmed the presence of an infiltrating carcinoma consistent with primary carcinoma of the bile duct. A segment III bypass was then performed. The patient’s jaundice settled but the patient was discharged from the hospital when it was determined that chemotheraphy and/or radiotheraphy were not likely to be of any benefit to her.
By the time that the patient presented to a hospice (approximately 3 months after onset of the original symptoms), she had lost approximately 42 pounds and was in very poor medical condition. The patient started NOE treatment in an initial regimen comprising a daily I.M. injection dosage of 0.3 cc which was increased to 0.5 cc after one week and maintained.
The patient’s general medical condition improved gradually. After approximately 3 months of treatment, the patient had gained approximately 28 pounds in weight and a follow-up CAT scan revealed no tumoral mass. An ERCP was performed approximately two months later to remove the stent. The ERCP also confirmed the absence of a tumoral mass.
The patient was then placed on a maintenance regimen comprising sublingual adminstration of NOE extract 3×0.3 cc every day.
Not so much now hes been okay with that
Over the years this web site has helped me tremendously, it is a huge resource for people who are dealing with this type of cancer, it becomes very useful when people share their experiences. Heartfelt thanks to you all and i pray for each and everyone of you when i read your stories.
My dads Indian piano is a small piano that u can sit on your lap and it has a bellow attached to the back of it that you use to pump into the piano to produce sound when you touch the keys.Its a bit like a harmonium.
my dad drinks juiced beetroot ive read that this thins the bile
My father will be a four year survivor this october.He was diagnosed with extrahepatic cholangiocarcinoma klatskin tumor.No Surgery no chemo and no radiation.June 23, 2010 at 4:23 am in reply to: Dad diagnosed with inoperable klatskin Tumour oct 2006 #38876
Sorry for not replying earlier. My father did now want to do chemotherapy because he understands how it can ravish your healthy cells as well as the tumor.What we did was bought a high quality juicer and juiced organic fruits and vegetables mainly carrots, beets and green veggies like cabbage or spinach.Supplements he took were beta carotene, multi vitamin tablets and a few other supplements like selenium.He did this for almost a year and it improved his health in general and made him stronger and healthier.He stopped taking the juices eventually because he didnt like them but he does continue to eat a lot of fresh fruit and vegetables.He understands his body quite well now and knows what he can and cannot tolerate.He does not eat fatty foods at all.
My e mail address is email@example.comJune 8, 2010 at 2:06 am in reply to: Dad diagnosed with inoperable klatskin Tumour oct 2006 #38868
The e mail is correct
and thank you all for you replies i just wanted people to know that although it is hard when a loved one is sick that we all need to have faith and empower ourselves.