nicg
Forum Replies Created
-
Posts
-
Thanks Marion,
I’ll follow those links tomorrow. Best not to do late in the day, or it’ll be followed by a restless night.
It’s all been a bit of a shock (again) to be honest. She generally appeared much better after the SIRT (apart from one really big glitch in week 3). She had more energy and was eating more so I don’t think anyone was expecting bad news. I guess with such local treatment you can inflict damage on the main tumor but not on anywhere it’s, unbeknown to you, quietly spreading.
Currently awaiting a long overdue phone call from the oncology dept….. The form of torture that I’m sure far too many have experienced.
Thanks again.
NicThank you for your words of support and advice. I’ve been reading this discussion group for a while before posting and have found it a great source of inspiration and knowledge.
The hospital setup is unusual in that even tho our hospital is not a specialist centre they had a MDT with Oxford (a specialist liver centre) to discuss mum’s treatment options (or lack of!).
After some thought she has decided to have the chemo (blood tests allowing). As this is the standard treatment it doesn’t need to be in a sprecialist liver centre. It would appear that trial treatments and SIRT may only be potentially available after chemo has been tried. This is when we’d contact the Oxford specialists.
Best wishes to all.
Nic
