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  • in reply to: New Member #92725
    nicola
    Participant

    It’s been a long time since i wrote on this site. After my Dad had the metal stent he was doing so well we were signed off palliative care. in october he had a massive bleed from his stomach. i never thought someone could bring up so much blood. Turns out my Dad has another primary cancer this time in his stomach. All blood thinners have been stopped even though the chance of a clot is very great as he has been on blood thinners for over 20 years. On 17th of December he was admitted to hospital with delirium. After Mri showed no signs of brain cancer or a stroke he still keeps having times that he doesn’t even know who i am . We are back under palliative care and they are good but I am worried that my dads abdomen is swollen with fluid and no medical person i talk to seems to care. I was wondering if this may be the cause for his delirium as they don’t know why it is happening. I have read that Cholangiocarcinoma can cause this buildup of fluid. My dad is also starting to have a lot of pain, just not sure which cancer is causing it. The stent is still working well. Any one who can help with knowledge of this kind of fluid build up would be very welcomed. The palliative care nurse just says there are two nasty cancers in there and dismisses that it could be a buildup of fluid.

    in reply to: New Member #92720
    nicola
    Participant

    Thank you Darla.

    Tiah, thank you for the information on Daw House.
    Dad’s doctor is in the Northern suburbs of Adelaide. He is under one of the specialists in the Gastroenterology and Hepatology department at the Royal Adelaide Hospital. As yet he is not receiving any medication for the cancer. My dad is type 2 diabetic, suffers from blood clots so is on clexane. has heart failure so is on furosemide but because of the damage done to his kidneys when his bile duct was blocked he has been taken off other medication that will damage his kidneys further. Its 3.3o am at the moment and I Am up with him now because he can’t sleep because of gout pain in his feet .He isn’t on the medication anymore to relieve this. Because of my Dad’s health and age chemotherapy isn’t an option. My mother died 21 years ago from multiple myeloma. 2 weeks after her first course of Chemotherapy she contracted pneumonia. Because of the chemotherapy the antibiotics had no effect so at the end I sat with her for a week in a room in C6 in the royal Adelaide Hospital watching her die. I really hope my Dad doesn’t have to suffer the amount of pain my Mum had with bone cancer. I work in a secure Aged Mental Health ward and I am just glad that he doesn’t suffer from Dementia as well.

    in reply to: New Member #92716
    nicola
    Participant

    Hi Tiah,
    my Dad lives with us so the palliative care will be at home for as long as I can manage. My dad’s Doctor has only just organised for this so our first nurse is coming to see us on Friday. It has been such an emotional 6 weeks with my Dad going from really ill to looking better than he has in a year. Just when i think I can relax for a while he gets a high temperature and the Hospital roundabout starts again. Since the metal stent last Tuesday he has been good. I am still working but I don’t know for how much longer as I have used up nearly all my leave. This week is the first time in 6 weeks I have been able to leave him on his own during the day so I can go back to work.

Viewing 3 posts - 1 through 3 (of 3 total)