nikki66
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Hello Charlene,
I have been reading posts on here since my Mom was diagnosed, I finally bolstered myself to join as I am having such a hard time with this. Your postings made me cry, your love for you husband is so evident, your devotion breathtaking. He is a lucky man to have you, I really mean that, my Mom always tells me that feeling loved is the only thing that gets her through this dreadful ordeal.
I am also the caregiver to my Mom. She was misdiagnosed many times before they finally got it right, they even told her the mass was probably a hemangioma! By the time they finally diagnosed CC, she had a very large tumor. She has recently had a resection, I know we’re lucky, I see many people don’t even get that option, but her surgeon told us this isn’t a “cure” but a way to extend her life.
Can I ask if your husband had the resection? If so, how did he fare afterwards? She is not quite two months post op and not feeling that great; still lots of pain around the incision, trouble digesting food, depression.
I worry about her all the time, she is just so special to me. My greatest fear is watching my dear mother die a painful, prolonged, premature death. Reading your postings, as well as others, makes me feel not so alone and gives me new ways to support my Mom. Thanks to you all.
Hi Gale, it’s amazing to read your story, it really mirrors my Mom’s. She recently had surgery for CC, she is 57. We were told there might be a chance that the resection might not be possible, I guess that happens a lot with this cancer, they discover things are different once they are “inside.” We went into surgery with this thought in our head, we were SO NERVOUS, but it was a success. It took nine hours, they had predicted five so it went just a LITTLE over! They removed a large tumor (9cm), the whole left lobe of her liver, and her gall bladder. Her team of surgeons said it was the most complicated bile duct surgery they have ever done as they had to rebuild all three of her bile ducts. Anyways, reading your story makes me SO happy as you are obviously doing well a year-and-a-half later. Her surgeons have warned us that having such a large tumor almost always means a poor prognosis, they told her the surgery wasn’t so much a cure as a way to extend her life, so as much as we are happy the resection went well, there are always those dire words hanging over us. Can I ask how big your tumor was, what stage you were given? I just want to hear that other people have had “big” tumors and are still here, winning the fight. I hate this disease, I really do. My Mom is truly my best friend, she is one of the most kind, wise, hilarious, irreverent, interesting, warm women I have ever known, I will walk with her through this no matter what. Thanks to you and anyone else that has any info for me, we’re new to this dreadful disease…
