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nikole

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  • in reply to: Introduction / Welcome #83936
    nikole
    Member

    Sandy,

    When I went to bed last night, I was questioning whether or not to look into that 2nd, 3rd, and 4th opinion. Thank you…because when I saw your post I got on the phone and scheduled with another onocologist. I am hoping we find that one that makes us comfortable with what he/she has to say.
    I appreciate you taking the time to reply to my post. I find so much comfort in knowing others like you are there to listen and give advice.

    God bless.
    Nikole

    in reply to: Introduction / Welcome #83935
    nikole
    Member

    Duke,

    Thank you for responding to my post. After reading your posts I was hoping that you would respond to the mine. I find strength and hope in reading these from everyone. I knew you were from Ohio and were battling like my father. It is helpful to hear from others who have dealt with the same issues as my father and I. Especially trying to find someone with a greater knowledge of cholangiocarcinoma. I will look into Dr. Sohal at the Cleveland Clinic. We were able to get an appt with Dr. Meropol from University next week and hope he is more optimistic than our previous onocologist. I will keep you updated with any new information we get. You and your family are in my thoughts and prayers.

    Nikole

    in reply to: Introduction / Welcome #83932
    nikole
    Member

    I am here because my father was recently diagnosed with stage 4 cholangiocarcinoma. He is 61 years old and it has spread to his abdominal wall. We live near Cleveland, Ohio and are having a great deal of difficulty getting an oncologist who is experienced in this cancer. He was told by a gastroenterologist from the Cleveland Clinic to go home and get his affairs in order. They were not interested in stinting his bile duct and it was necessary for him to feel better. We found a surgeon at University who gave us hope and was able to place a stint in one of his bile ducts. His bilirubin levels dropped and he began to feel better. The surgeon recommended an oncologist. The onocologist we were recommended to was very negative. He gave all the cons to chemo and said it was the only potential option. Quite honestly, I feel he didn’t want to give it to my father stating it probably would not work. Needless to say, we are in the process of trying to find another onolcologist . We feel lost! Do any of you have recommendations for a doctor in Cleveland, Ohio area? I have a call into a doctor from Washington University St. Louis because it has been a battle finding someone experienced here. Thank you for taking the time to read my post. Take care and God bless.

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