nn
Forum Replies Created
-
Posts
-
All Genetic tests that are currently available are listed at http://www.genetests.org, a government funded site that lists laboratories conducting testing. Any reputable lab that offers genetic testing for cc would be listed on that site, and there is currently no hits when one searches cholangiocarcinoma. You should be very careful about the insurance implications of whatever testing you are considering, and also to whom you disclose your family history. [You should also be aware that there is much “crackpot” testing services advertised out there.] While there may not be testing or knowledge of specific genes implicated today, one does not know what kind of relevance that information will have in the future. When you see genetics professionals, you might give some thought as to how the information in the geneticists’ chart can be kept separate and anonymous from your broader care history.
Hope this helps…good luck.
Thank you all for your kind and helpful responses. This is such a great community to have, and I appreciate your thoughts very much. Best wishes to all of you.
Dear all, thank you for your kind and helpful advice and your warm wishes. I anticipate that the oncologist visit will be the start of a process, and so will ensure J.J. is able to ask questions about the treatments you suggest. After the first visit, we’ll be better able to assess whether the care she’s getting is adequate and where we might go for second opinions and at that point I imagine we’ll consult members here.
Please excuse the brevity of my reply. I very much appreciate your kind and detailed responses (and those of others who might come after you), but right now I’m overwhelmed having spent the last 2 days sifting through information on this site. I need to get away from the computer.
Best wishes to all of you.
Nn
