normaalicia18

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  • in reply to: My Eddie has passed :'( #47367
    normaalicia18
    Spectator

    Mayra,
    Sorry for your loss. I pray for you and Kayla, May the LORD give you strenght to continue. I just lost my dad two weeks ago. Buried him in San Benito Texas. He also had CC for 18 months.

    in reply to: cc and my DAD- #41649
    normaalicia18
    Spectator

    God is Awesome

    Well my dads been on this new chemo for about 4 weeks, he got his results this week. I counted 5 tumors. All tumors shrank 20 to 30%. The doctor was so EXcited . He will continue to take this chemo for awhile longer or until his body cannot take it anymore. There was one tumor in the lung that actually grew.

    He had been real sick to the point that I didn’t think he was going to make it. In the hospital twice, has VRE- SuperBug. Case management services kept coming into the room to make sure my dad had a Living Will. So we knew he was very sick and probably wouldn’t make it. He proved them wrong. They sent him home , started cycle 2 of chemo. Slept all the time, wouldn’t eat.

    We called the family together to make sure all his affairs were in order.

    When he was well enough to travel we took a trip to his home town. My sister and I had a Mission. We went to the Funeral Home and made sure everything was in order. That was very tramatic for us. His wishes are to go home when he passes.

    On this trip he saw his sisters and they prayed for him. He was so sick I was ready to take him to the hospital. He had terrible stomach aches. I Believe in the Power of Prayer. On the way home he was alert and could actually walk without a cane.

    This Chemo is called Aurora Kinasa Inhibitor. A clinical trial my dad just started . I encourage everyone who has this terrable illness to look for other options. I pray my dad gets cured. But only the LORD knows what is in store for him.

    in reply to: cc and my DAD- #41648
    normaalicia18
    Spectator

    Thank you everyone for your well wishes.
    My dad is going to MD Anderson in Houston, TX. Clinical Trial Protocol 2009-0827 aurora kinasa inhibitor . Next week he will be scaned and I will let you know the outcome. My dad has two tumors in bile duct in the liver . The cancer has spread to the liver and lympth nodes in that area. The report says he has cholangiocarinoma with metastasis involving extensive adenopathy. Not sure what that means. Are all his lympth nodes enlarged or liver or tumors in lung ? Will ask dr when we go see him next week. He is no longer confused but is experiencing alot of abdominal pain. Feels constipated he says, but he is not. Lots of cramping, no fever. Tempted to take him back to hospital if cramping continues. Might be because of the VRE virus. Now I am confused and concerned. How do I know its the chemo or is it his illness thats effecting him. Plus my poor dad has an abdominal aortic aneurysm measuring 3.4 cm. I see him deteriorating as the days go by. Will the Drs tell us when they can no longer do anything for him or how much time he has left? Thank you again for letting me get this off my chest.

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