nur1954
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Hans – I had such mixed emotions when I read this account. I am so relieved that Kris was still in a fairly “positive” mind set. I am thankful that the last part of her journey here was as quiet and peaceful as it could be given the circumstances. Of course, that didn’t stop my tears. I was especially sad that you were alone with only the hospital staff. I wish someone had been with you for support. Thank you for sharing Kris’ story with us. – Nancy
Hi Noreen – Yes, my son was diagnosed at age 29 and lived just about a year after the diagnosis. He was Stage 4 and knew there was not much of a chance for recovery. He chose to do some Clinical Trials, in the hope of something new or perhaps some benefit to future patients. It was a very difficult time for us. He was the kindest person I ever knew and we miss him every day. – Nancy
Cyndi – Great advice from Lainy. It is so hard to admit to ourselves that a disease can be progressing, but it is most important that comfort remain the #1 thing on everyone’s agenda. Oxygen can help as Lainy said. It was good that Linda could eat a bit. Wishing you all well – Nancy
Walk – Thank you for putting my son John in the same category as Kris. They were similar in many ways — both had a great sense of humor and compassion for others. It does suck — these young people being taken from us from this horrid disease. I cried on and off since I heard the news about Kris. I relived everything from my end and I still am feeling down in the dumps. When will it end???? It does suck!!!!
I’m going to be honest. I would probably not leave it on my phone. I would attempt to make a recording that I could keep, but I think it could make others uncomfortable — at least after a bit of time. However, you can’t always go by me. I am not one to surround myself with things that make me too melancholy and I think that is what would happen. But — this is just my opinion — I also believe in doing whatever works for you!
Hans – Thank you for your post. As a result of our love for Kris, we love you too. I was worried about you being all alone there in Germany and was wondering how you were doing. I am grateful for the information. It is good that you are going to spend some time with friends for a bit until you can return to Sweden. I love that Kris wanted her ashes in a cookie jar! I think that is perfect! And I think you should always have some tulips nearby when they are in bloom. I will think of her – and you – every day. Peace – Nancy
Bettyanne – We must have posted at almost the same time. I didn’t know Memorial Sloan Kettering had locations in Long Island. Good to know…..
P.S. Meant to say “if he is not far from NYC…..” – and – “the drain may help relieve…” – Sorry, I’m tired and my typing is atrocious right now.
Hi Noreen – Welcome to the best little support group in all the world! Sorry to meet you this way, but you’ve come to the right place for some great advice and help. I’m from NJ and don’t know a lot about Long Island, but if he is not from from NYC, Sloane Kettering is one of the best cancer hospitals around. However, I can only offer this advice from my side of the fence: if he can have the chemo close to home, it is sometimes a better option. You could go to Sloane for their advice on what the best chemo procedure is, but have the chemo done at a local cancer center or hospital. My son was seen and had some procedures in NY, Maryland and Minnesota, but we wound up doing his chemo close to home at the suggestion of the doctors at the Mayo Clinic. I’m glad we did. He had so many complications and problems that it was easier being only 20 minutes from the hospital that was treating him. Anyway – that gives you something to think about. My prayers and thoughts are with you, your uncle, and your family. It’s a tough diagnosis. Also – the drain may have relieve a lot of his symptoms right now. Best of luck and keep us posted – Nancy
Andrea – My son always seemed to have problems with his drains….leaking and not always working right. Flushing did help, but for him, it was only temporary. I learned how to clean all his bandages and clean things up and sometimes I had to do that three times a day. He would have things straightened out in the hospital and then it would start again. I wish I had an easy answer. I’m not sure I really ever understood what was actually going on with the drain. Sometimes, the doctors even seemed puzzled by it! Glad that things seem better right now and hope that continues for your Dad. – Nancy
I woke up this morning to see this post and my heart is broken. I always thought that Kris’s spirit reminded me so much of my son’s spirit in their fight against this disease. I told her that on many occasions and she was very touched by that. Everyone — and I mean EVERYONE — will miss her greatly. I can’t stop crying…..
Brad – The two hospitals mentioned by Lainy are mentioned on this web site often as the best. My son was seen at the Mayo Clinic in Rochester, MN and they were a wonderful group of doctors and a fabulous, well organized facility. However, he was not a candidate for surgery so there was not much that they could offer for him there, and we wanted to be closer to home once we knew surgery was out of the question. Best wishes….keep on healing – Nancy
I posted this on your introduction note — have you tried good old Carnation Instant Breakfast? Full of nutrients and calories and sometimes eaisier on the stomach. Also, contact her doctor for some nausea meds to help her keep food down. Hope this helps.
Welcome to this wonderful web site where you will find so much information as well as a world of support. Please feel free to ask questions as you go along….there is a wealth of knowledge, experience, and wonderful human beings on this web site who will try to help you through this complicated disease. Have you tried Carnation Instant Breakfast for your Mom to drink? It has lots of calories and is usually well tolerated. It’s as good as Ensure but much more reasonably priced.
