nur1954
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To all – The other thing I forgot to mention is that I try not to focus on the date of John’s death….it’s so painful and just an awful reminder of what he went through. Instead, I put all my energy into John’s birthday — a wonderful day in my life. I ask all our friends and family to do something special and kind on his birthday as a tribute to him and what he stood for. In this way, I am not remembering his death, but am remembering his life and the thirty years that I was blessed to have him as a son and as my friend. As much as humanly possible, I attempt to go through the anniversary of his death as a “normal” day and I try not to dwell on it. I know this won’t work for everyone, but it is what worked for me and my husband. Believe me, it is not that we don’t remember….but as best as we can….we try to remember only the good stuff. Hope this helps someone else…..Nancy
Kris – Always so happy to read your posts….you are always an inspiration. Get in that water and enjoy the ride! –
P.S. Is it your mouth that is dry or are you feeling dehydrated all over???? There is a special mouthwash that helps retain moisture that is available here. I would send you a care package if you think that will help! Just say so and I’ll send it off….Nancy
Kris – I was hoping to find a post from you. I understand your frustrations…..I have to agree with others — you may need to have a throne brought into your room for your comfort and ease and convenience (at least for now). You need to be aggresive with your nursing staff….they should be addressing ALL your needs, especially if you feel dehydrated! It’s so hard to keep up with all of this while you are tired all the time. Don’t worry about anything….just know we all love you and think of you each and every day. Hope your little kitties are sleeping right next to you and keeping you snuggly and warm. Hugs from NJ – Nancy
Last year, I changed things up for the holidays. My husband and I went to a relative’s house and spent time with family (not in our own home). It was easier than being home and wallowing in our sadness. We surrounded ourselves with friends, family and children. The children always make it easier! I went to bed early … as an escape. But that was o.k. I got through it!
Shari – It is very strangefor you to hear these words but congratulations on — what I believe – will be a full recovery. The fact that you were able to have surgery and you have clean margins is a wondeful prognosis. This site will help in whatever areas you have questions. There are so many stories here and it will take you a while to navigate through all the different subject areas, but you will find whatever you need here. There are many stories and many people who will help you. The Mayo Clinic staff members are wonderful, aren’t they? Best wishes and I hope you keep feeling well with your chemo. The regime you are doing seems to be very well tolerated by most folks. – Nancy
Daddylove – You will find wonderful support on this web site. We have all so many experiences to share with you. Each patient must do what is best for them. This cancer is a tough one…that’s just the truth. There does not appear to be a right or wrong way to go about fighting it. The only positive results have seemed to come when someone is diagnosed early enough to undergo liver transplant. Give your Dad all the love, respect, and support that you can. He sounds like an incredible man. Feel free to ask any questions on this web site….it is a source of great comfort to all patients and caregivers alike! – Nancy
Thank you all for the great big welcome. I know John found a lot of support on this web site and it was the one place he could go when he had questions or needed advice. I hope to be able to share and help where needed. – Nancy
Losing someone so young is so horrific….I’m so sorry for you and your loved ones. When I lost my son (30 years old), I was grateful that he didn’t have children because that would have seemed so much harder. Now — a year later — I sometimes think it might have been nice if he had a child to carry on his blood line and his name…..a part of him would have been left behind. There is nothing fair about this disease!
Thank you, Marion. Yes, I love Kris and I love her strength and attitude. I always tell her she reminds me so much of my John. I must say that my head is foggy when it comes to the year of John’s treatments but I will try to share my knowledge of what he went through whenever I can. I also want to be supportive – in particular – to any parent who is dealing with this disease. It’s so much rarer in young folks so the support in this area is not as strong as it could be.
