oceangirl

Appreciate all the support and advice from everyone it really helps. I will keep mentioning the liquid nutrition to my mom and sister in law who are his primary caregivers. Thank you for sharing your personal experiences KrisJ. He did eat some lunch with my mom today. Is having a port put in for the chemo tomorrow and then trying to get him home. Praying every day the folfox is doing something.

Hi Lainey, thank you so much for your helpful and caring response. He has been started on an antidepressant but of course they take some time to take effect. I am not surprised he is depressed either with so much stacked against him.i will mention the carnation instant breakfast to my sister in law and see if he will try it. He has not eaten much since the stroke and starting the new chemo. He lives in and is being treated in Southern Maine and did go to Dana Farber in Boston, but not much more was offered or suggested for him. I’m starting to wish we had pushed for more opinions and looked at other places, but my brother can also be stubborn and it was tough to even get him to go to Boston at the time. We are hoping the folfox works too and that its all not for nothing as he has been so miserable. He is dealing with all this and having to be in rehab to get therapy for the stroke, because that treatment can’t wait either. We are all trying to stay as positive as we can. somedays its really hard. its hardest on my mom and sister in law, they are working so hard to take care of and advocate for him. thank you so much for your kind and encouraging words and prayers. It helps to not feel so alone in all this especially this cancer we had all never heard of before. Peace-