Thanks to tstewart4128 and Lainy for replying so soon. This website is wonderful, and its nice to know we aren’t alone in this groping in the dark.
Our care has been in Boston so far. We are strongly considering a second opinion at the Mayo Clinic in Minnesota, particularly based on stories we have read on this site.
We have submitted an online request for an appointment, and we’ll probably call as well. Is this the best way to get into the system? Any other options?
Thanks for everyone’s help in advance.