onlyone
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Hello. I am posting to see if I can gain any more knowledge or updates in regards to options for gallbladder cancer patients. My dad was diagnosed in December 2014 with stage 4 GBC. He has had 5 rounds of Gemzar and Oxaliplatin and his latest scan showed a significant increase in lung micro nodules. He is now off chemo for three weeks and we are looking at study options vs doing FOLFIRI and Avastin with his local doctor. He looks otherwise healthy and you would have no idea those awful scans belong to him. We are going to the Mayo Clinic in AZ (we live in San Diego) to meet with a doctor there and look into a BBI608 and BBI503 trial. I was wondering if anyone has participated in either of those and if they have had any success. Also if anyone has exeperienced FOLFIRI and Avastin and had any success. We are running out of options and time. He doesn’t want to suffer too much but wants to stick around for his wife of 50 years, his daughter (me) and his beautiful grand children. Open to other ideas as well. Thanks
Thank you, Melinda for info on that NIH trial. Unfortunately , my dad does not qualify as he is 76. I am wondering if there are any members of this site who have any experience with gallbladder cancer specifically with KRAS amplification. I would love to know what treatments were used. I Am now looking at clinical trials . I have heard good things about the Merck Drug MK-3475 but most trials are full for this type of cancer. He is about to have his fifth chemo and is not handling it well perhaps due to a Genzar drug reactiion. My guess is it is time to move to another type of therapy. Hoping to get feedback.
Thanks for responding so quickly. We already had a few opinions and have changed his primary onc in San Diego from a general to one specialized in GI cancers. We have also been to LA to see Dr. Heinz-Joseph Lenz and have a doctor at MD Anderson reviewing his records as well. Thanks for the links and if anyone else has some clinical trials to recommend or an opinion on FOLFIRI that would be great.
