patti77
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Music to my ears! Thanks Nancy, for sharing the excellent news that brings hope…Congratulations to you and Ron!!!
God bless…
Patti
Hi again folks! Just writing with some “new news” on Bruce. Here we are into our third year and Bruce is doing pretty well and “hanging in there.” As you might remember, last July (2011), his cholangio came back with a vengeance…really surprised us. It was back in his liver and had spread to his spine and lungs.
Dr. Marks put Bruce immediately back on the Gemzar/Cisplatin that had been so successful in the previous year. Bruce also continued with the following supplements:
– PectaSol-C (Citrus Pectin) 5 grams 2X daily
– AveUltra (Modified Wheat Germ – also known as AveMar) 9 grams 1X daily
– NK-Stim6 (610 mg Arabinogalactan Heartwood/400 mg Olive Leaf Extract) 2X daily
– Super Bio-Curcumin (400 mg Curcuma longa – turmeric) 1X daily
– Mega Silymarin (900 mg Milk Thistle) 1X daily
– CoQ10 (100 mg) 1X daily
– Vitamin D3 (1000 IU) 1X daily
By January of this year, the lungs and spine were clear and the 2 tumors remaining in his liver were very small. They took him off of the chemo for February so that he could have a PET scan at the end of February. The PET scan confirmed the great news and they decided to allow Bruce to remain off of the chemo for March. OF NOTE: Dr. Marks is now thinking that Bruce’s supplements &/or diet are making some difference for two reasons. 1.) They did not expect Bruce to “still be here” and call him a “walking miracle” and 2.) He has absolutely NO neuropathy over any of the periods that he has been on the chemo, and this (I surmise) is unheard of.Bruce had some “not so good” news last week when they did another CAT scan and thought they saw something on his kidney and one of the two tumors on his liver has grown again in size. Bruce had an ultrasound yesterday and it was determined that the “thing” on his kidney is nothing but a cyst
and Dr. Marsh is going to ablate the two liver tumors tomorrow. Bruce is ecstatic. So on we go with this battle!I call this battle a lot like the carnival game, “Whack-A-Mole”….once you pound it down, it pops up somewhere else…but you have to keep pounding to get all those critters down in their holes.
Hang in there folks! I am hearing a lot of great news lately about breakthrough discoveries….Keep on fighting the good fight!!! I am going to post this link elsewhere on this site, but here is a recent article about a “universal cancer vaccine” (developed in Israel) that is in clinical trial NOW: http://soc.li/0MDgO0O .
With love and blessings…
Patti
Keep the great attitude, Maria!!! Thank you for sharing your excellent news!
We are keeping you in our prayers!
Patti
Hi everyone…I just wanted to give a quick GREAT NEWS update on Bruce. He had started back on chemo this past July/August as the tumors had returned and spread (liver, lungs and spine)…since that time, his CA199 tumor marker has continued to drop from a high of 78 in July to 8.6 this week! The marker has been within normal range (less than 33) for five months now!
At Bruce’s last scan in November, we learned that the tumors are shrinking significantly, with some already gone. Bruce will have a PET scan at the end of February and we are very optimistic that we will have great news, again.
At this point, we are entering the 3rd year of Bruce’s battle with this disease…and are extremely grateful for every day!!!
We are keeping all of you in our prayers as you continue to fight with courage and tenacity!
With love, support and prayers…
Patti and family
Hi everyone! I just “reconstructed” to the best of my memory…the original post. I will continue to “edit” it as I remember some of the information that was shared there.
Keeping you all in my prayers!
Patti
I just noticed that the bulk of the original post is missing. I did not delete it…I will try to salvage the content and repost…Wondering if the webmaster for this site might know how to retrieve the information. It appears as if the website might have been updated as a whole, and perhaps my content was deleted at that time. Not sure who I should notify that this content is missing.
Hi Lainy! Thank you for always being so supportive of ALL OF US and our families! I am totally in awe of the time that you take to personally respond to everyone…and to lift us all up!
It truly will be a great Thanksgiving! We are SO grateful and blessed!
BTW…Kevin (who wrote the article on my brother) is my son. I am SOOOO very proud of him!
We continue to pray, laugh, hope, love…and eat right!!!
With love and gratitude for all that you do!
Patti
Jim…We will keep you in our prayers! Sending good thoughts your way…
Stay optimistic! Stay strong! We are optimistic, as well…and look forward to the great news when you are able to share it.
Hello everyone…sorry for the long absence…but I do have an update and some news to share. Since my last post on this thread, we have been through a lot (dementia issues with our father, moving my retarded sister back in with my parents…and numerous other issues on top of the roller-coaster ride with Bruce!) All-in-all, Bruce is hanging in there…and we are all grateful to be able to share the following with you. The full story is on our website for Bruce (http://www.brucehaney.org/brucesstory).
Here’s the news:
Update – July, 2011
We received some “tough” news. Bruce’s cancer had returned and had also spread. There were tumors in his liver, nodules in his lungs and a spot on his spine. Needless to say, we were all rocked by the news. I must say that God is great and gave Bruce the strength and fortitude for a long and difficult battle. This disease is truly insidious and is not going down easily. Dr. Marks put Bruce back on the Gemzar/Cisplatin that worked so well for him 2 years ago, and we all held our breath. Bruce, being the proactive soul that he is, requested that his CA199 test be done weekly rather than monthly, so that he could see quickly whether the Gemzar/Cisplatin was working.Update – August, 2011
Bruce’s Golf Outing took place with outstanding results (over $263,000 raised for the Raisman-Haney Fund for liver cancer research!) Bruce’s CA199 marker test results were showing the news that we had hoped for: the number was dropping from a high of 78 in July, to 58, to 38, and to 26 by the end of August (within normal range) Note that the “normal range” for this marker is between 0 – 33, with the lower number, the better. Bruce had a CAT scan at the end of August/beginning of September which showed that the tumors/nodules were shrinking substantially (40-80% reduction!).Update – November 20, 2011
We have continued to receive great news on the CA199 marker with the latest results placing this marker at 10.6!!! Bruce had another CAT scan on November 15th, with the great news that we were expecting: the tumors are continuing to shrink significantly (20-30% from the last scan). Dr. Marks is very pleased with how Bruce is doing. Bruce continues to religiously hold to the diet that we began over 2 years ago, and which we truly believe has made the world of difference in how Bruce has been able to combat cancer. Please continue to keep Bruce in your prayers…we are all praying that we can treat this disease as a chronic one, rather than a fatal one. Faith, Hope and Love abide!I have added a link to more information on the connection between Cancer and Fungus, on this thread: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=47051#p47051
I am hoping to have more good news on Bruce after his scan this Tuesday. Will keep you all posted. I am praying that between the Octreotide and the Nizoral, that the cancer is still held at bay.
Keeping you all in my prayers!
Patti
We are grinning ear-to-ear in Pittsburgh PA at your wonderful news! Congratulations on reaching your goal…best wishes going forward! Thank you for sharing great news & hope to inspire others!
With love & prayers…
Patti
Some very good news (we think!)… Dr. Marks reviewed the detailed report on the extensive bloodwork profile on Bruce done by Dr. Pierotti, and agrees that Bruce should take the recommended supplements listed above. He seemed a bit intrigued by the candida yeast found in Bruce’s bloodwork. Bruce began taking the supplements on Wednesday and has been feeling progressively more energetic over the past two days. It is probably too soon to tell if this is a good trend… But we remain hopeful!
In the meantime, I am reading some very interesting thoughts tying yeast-mold-fungi to cancer, along with their “thriving” on an acidic environment. Has anyone else heard much or have had experience with this? Another topic that I would like to know more about is the effect of increased oxygen on cancer….has anyone heard anything regarding research on this?
Sorry for the delay, but I am finally back with the list of supplements that my brother is currently taking:
– PectaSol-C (Citrus Pectin) 5 grams 2X daily
– AveUltra (Modified Wheat Germ – also known as AveMar) 9 grams 1X daily
– NK-Stim6 (610 mg Arabinogalactan Heartwood/400 mg Olive Leaf Extract) 2X daily
– Super Bio-Curcumin (400 mg Curcuma longa – turmeric) 1X daily
– Mega Silymarin (900 mg Milk Thistle) 1X daily
– CoQ10 (100 mg) 1X daily
– Vitamin D3 (1000 IU) 1X dailyWe also have a list of additional supplements that have been recommended by Dr. Pierotti in Pittsburgh, based upon extensive blood work in which several deficiencies were discovered, along with yeast in Bruce’s blood. Bruce will be seeing Dr. Marks tomorrow, and we will be asking if these additional supplements are ok for him to be taking. They are as follows:
– Proboost (Thymic Protein A)
– Colostrum
– DHEA
– Cortisol
– Pregnenolone
– Thyroid T3 Combo
– Nizoral (for the mold/yeast)Some Additional News:
Bruce just had a scan this week and all is clear!!! Bruce’s CA199 marker keeps dropping which we believe is due to the Octreotide shot that he has been receiving every month for the past 3 months. I will add more details after tomorrow’s visit.
