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Viewing 15 posts - 1 through 15 (of 82 total)
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  • in reply to: Scan done..now the wait #79909
    pattimelt
    Participant

    So sorry Stella. I haven’t had good news after any of my treatments so far.
    I know how discouraging this is. I hope & pray you can have some comfort & peace.

    in reply to: port a cath #79895
    pattimelt
    Participant

    All is good with the port a cath. I remembered the doctor telling me the stitches are inside & covered on the outside with a glue typed substance. So I took off the bandages & there was definitely a covering of the glue. Took my shower & all looks good! I will go have it checked Monday & start the chemo Tuesday.

    My tumor is pressing on my diaphragm & causing a really bad cough. It hurts when & cough & I also cough when I take a deep breath. Now my left rib area really hurts when I cough. My tummy has also gotten pretty big. Lets hope my chemo shrinks enough to stop this nasty cough.

    in reply to: Bought a Ticket on My Roller Coaster! #79795
    pattimelt
    Participant

    Lainy, I had a meningioma 10 years ago. I must say it was a lot easier than CC.
    I had surgery & they got the whole tumor & had no problems after! It was benign. It is the same tumor Elizabeth Taylor!!

    in reply to: Two Offset Printing Workers with Cholangiocarcinoma. #79852
    pattimelt
    Participant

    My husband was a printer for many years & I worked in the office & then 2 years ago in another printing company!

    in reply to: im speechless #78425
    pattimelt
    Participant

    So happy for you ! How I long to hear those words someday!
    God Bless You!

    pattimelt
    Participant

    Is this IRE done in the USA?

    in reply to: Hope for resection! #77669
    pattimelt
    Participant

    What chemo is your mum on?

    in reply to: New to Site #75750
    pattimelt
    Participant

    God Bless you Wordman! It is amazing that God gives you His strength to still be able to continue being a pastor! I don’t know if you knew of Pastor Chuck Smith but he had the same strength & gave his last sermon 3 days before he went to be with the Lord!

    in reply to: My husband is going in for Y 90 this tuesday #77235
    pattimelt
    Participant

    I also had the y 90. Same as Lauren with the pressure on the groin where they insert the instrument for the spheres. Other than that I only had some fatigue & a little nausea. Nothing serious.

    in reply to: Results of Recent CT Scan Not Good #71129
    pattimelt
    Participant

    Your story is much like mine Mary. I know how you feel & how hard it is to hear that nothing has been working! I feel good though. Have not had any CC symptoms so far except for a little pain where the tumor is & some tummy issues. But feeling better since I am on a chemo break. I am trying to get some referrals but only have an HMO & keep getting denied. I can only take one day at a time & make the best of each day. Also having faith in God who is the Great Physician!
    Blessings to you!
    Pattimelt

    in reply to: Our appointment with the surgical oncologist is coming up #77218
    pattimelt
    Participant

    Dr. Imagawa was the surgeon I saw at UCI. I was not able to have surgery but he referred me to Dr. Kuo the radiologist who did my SBRT. My tumor did not shrink so Dr. Imagawa sent me back to my regular oncologist for chemo. I had 2 rounds of Gem/Cis but my platelets went way too low so then 2 rounds of Oxa/Zeloda. Unfortunately none of the chemo shrunk my tumor. I am now trying to get a referral to Dr. Selby at USC who has done surgeries that Dr. Imagawa would not do. I have been denied by my insurance to see him. It is very frustrating. Dr. Imagawa is very straightforward & lets you know exactly where you stand. Your questions are all good questions for him. Hopefully he will be able to perform surgery for you! Blessings to you.
    Pattimelt

    in reply to: Change insurance #77122
    pattimelt
    Participant

    Thanks KrisV. I am appealing the denial to see a surgeon at USC.

    in reply to: University of Chicago Trial FOLFIRINOX. #75129
    pattimelt
    Participant

    I didn’t lose any hair with Gem/Cis but I only had 3 rounds of it. Then with Oxa/Xeloda did not lose any hair either. Also only 2 rounds of it.

    in reply to: Alternative advice #77052
    pattimelt
    Participant

    The coffee enema thing is from the Gershon (sp?) institute. You also have to drink 13 green drinks a day & to go to the clinic would cost $4000 a week!! There is a documentary you can watch online. It is interesting but I couldn’t do the coffee thing or the 13 drinks!

    in reply to: Alternative advice #77047
    pattimelt
    Participant

    I just realized I posted this in the wrong place. Should have been in the Alternative place!! Oh well!! When I asked the surgeon how I got this he said, “You must have pissed off a witch”!! Ouch!
    Thanks for your input. I agree with you all!

Viewing 15 posts - 1 through 15 (of 82 total)