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I want to hear that word someday!! STABLE!!
It has been almost 2 weeks since my 2nd chemo. I will be having 3rd on Thursday. I was able to attend my grandsons graduation & his grad party. Last Thursday I started having severe pain in my lower abs. I knew what it was as I have had this many times & it actually led to finding my CC . After my 1st chemo I had bad constipation & then was able to control that with stool softeners. But that 1st bout of constipation has caused me to have a flare up of diverticulitis. So although I was tolerating the chemo with not much side effect except fatigue I have to deal with this. My doctor put me on cipro/flagyl antibiotics & have to take them for 10 days. He said if the pain isn’t better in 24 hours he wants me to have an ultrasound. It is much better today so hopefully by Thursday I will be ok to have the 3rd chemo & not have any constipation!
I will be getting 2nd chemo today! The worst issue I had with 1st was constipation from the Zofran. So I took Milk of Magnesia then got diarrhea!! Any suggestions??
I did very well with my chemo yesterday. I was there for about 4 hours & came home & felt good. I was amazed when I woke up this morning & felt so normal! No pain or nausea! We actually took a ride & went to the beach for a little walk. I felt great. I have been eating quite a bit too. Right now I am really tired.
My schedule for the GEM/Cis will be 8 treatments. 2 times in 2 weeks then 1 week off until 8 treatments. Then will have scans to see if they shrink!
Thanks Holly! I am going to pursue 2nd opinion. My PCP is helping me with that. he is just my family doctor but so supportive. The doctors at UCI seem to have been in disagreement about when to do my post SIRT radiation scans. The radiology oncologist said to wait 6 – 8 weeks & then when I saw the surgeon he wanted to do it sooner. So I had the MRI 5 weeks after the radiation. I am a little concerned about this tumor board meeting that they will not be together on what to do next. Thus my need to get 2nd opinion. I have only had the radiation treatments. No chemo yet.
You all are so knowledgeable! I am learning alot being on this discussion board. It is helping me so much.
Thank you lisacraine! Very encouraging to hear good results. I have been feeling really good this week. My anxiety causes some physical stuff but no nausea & the bad taste I was getting is gone. When I feel this good it is hard to believe I am in Stage 3 CC!
Does anyone know or has anyone been able to be present when the ‘tumor board’ meets to discuss your case? My doctor is going to the tumor board on Monday & then we will see him afterwards.
I recently had 2 SIRT treatments that sound similar to SBRT. It has been 6 weeks since last treatment & I am finallly feeling good. I was so tired & nausea. Now I have to wait to see what will be next. Sometimes I wonder if my doctors know what they are doing! Thinking of you & hope your side effects diminish.
Thanks Lainy. The MRI results were not conclusive. It did not show that my tumor had changed but the doctor said the radiation may have caused some swelling before it ‘shrinks’. This is a strange disease. We saw a guy at lunch yesterday with a t-shirt that said, “F— CANCER”! I never use that word but I wanted to wear that t-shirt yesterday!
I am very frustrated. The results of my MRI were not great but doctor said he needed my bloodwork redone to see what the CA 19 will tell & then present my info to the tumor board to decide if I should have a 3rd sirtex radiation or move on the Chemo. I am feeing really down tonight.
My heart goes out to you. I have been going to a cancer support group & the pastor who leads it always says, “We are all terminal”. Only God knows the number of our days. The only way I am getting through my CC is by the peace God gives & all the prayers of friends & family. God walks with us through all our trials & tribulations. The joy of the Lord is my strength! God bless you !
It was so good to have your personal thoughts! I must have the very same thought patterns as you do! I also have good days & bad days. On the good days I do everything I can do & even on the bad days try as much as I can. My husband & family & dear friends are all so supportive & optimistic! I am thankful for them & as one of my dear friends keeps saying, “just Keep Swimmin”!! Also I know God is the Great Physician & He knows the # of my days better than any of the doctors!
I have had some friends suggest that I use doTERRA essential Frankincense oil. Has anyone tried this ‘alternative’ medicine? One of them was determined I do it & gave me a bottle. I said I couldn’t afford it (it is $90) so she gave it to me. My massage therapist also suggested I rub it on the area of my tumor! I am such a sceptic & my doctor doesn’t see any benefit of it.
Next Tuesday, April 30th. Then May 6th with my doctor to get results. Lots of waiting because of all the authorizations I have to get.
Thanks for the info! I have been feeling really good the past 2 days. Waiting until I have my MRI before I will know what is next for treatment. So I will enjoy the feeling good days.