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I did ask about pain & taste in my mouth. He said the pain might be a good thing as the radiation may cause the tumor to swell before it shrinks! I haven’t had pain there for the past few days. He said the taste in my mouth is from the tumor. My appt. was at 3:00pm & we didn’t see him until 4:30 so didn’t have time to go further with the questions. I was somewhat frustrated. I need to be sure we have more time when we see him after my MRI results come in.
I have had a couple of nights where I wake up with what is like a bad hot flash but I get kind of sweaty too. It lasts for a few minutes & then I am totally exhausted & weak after. Can’t figure out if it is anxiety or symptoms! Still waiting to set up appt. for my pre ‘mapping’ for the radiation treatment. Waiting is not fun!
I went to a cancer support group this morning with my hubby. We were very blessed by being there. It is so good to talk to others who have cancer too. They were very caring & prayed for us as we will for them. God is the ultimate healer & He knows the number of my days. I will trust Him for being with me on this path.
I will be talking to the person to schedule my ‘mapping’ appt. tomorrow. Hopefully it will happen as scheduled!
Thanks for your support too!
I had my CT scan on Friday so should hear tomorrow as to what is next. I am having so much anxiety over this. I am a strong Christian & believe totally in God but at this point I don’t feel much peace. I have had divirticulitis & trying to avoid getting another attack during my upcoming treatments. I want to live each day to the fullest but it is hard to do anything but worry! This is an awful cancer. I am actually surprised to see how many people have it. I thought it was only 2 out of 100,000 people who get it. I am rambling but just needed to talk to some people who have been there or are going through it too.
The surgeon I saw at UCI is very familiar with CC. Dr. David Imagawa. He is the chief, division of hepatobiliary surgery at UCI. The Chao Family Comprehensive Cancer Center.
Thanks again for your input. I agree with 2nd opinions but they take time too. I am trying to get this whole process moving as quickly as I can.
I am 66. I will check it out.
After my biopsy I went to an oncologist in my healthcare network. She had me have a PET scan. It came back with good results as far as the CC had not spread to any nodes or anywhere else. It is inside my liver. I have no symptoms yet. No jaundice or grey stools. I feel fine (except for trouble with diverticulitis attacks).
She said it is very hard to treat CC so advised that I go to UCI medical center where there are specialists in this type of cancer. So then I had to start the process of getting all the authorizations being out of my healthcare network. We only have an medicare supplemental HMO. On Dec. 26 I saw a surgeon who said because of the size & location of my CC surgery would not be an option at this time. I then had to wait for authorization to get the ‘sirtex’ radiation treatment. It was authorized & I saw a radiology oncologist & a radiologist Monday. I had more bloodwork & now need an updated CT scan before proceeding with the treatment. 1st have to have the angiogram that will map the path for the radiation. Right now I am waiting again for results of bloodworm. Everyday seems to be too long for me. I am glad to find this support!!