pauldetroit

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  • in reply to: 43 yr old male diagnosed last month #78648
    pauldetroit
    Member

    Update;

    I had 5 chemo treatments of cisplatin and gemzar. It was no fun. I have one more. I also do a short day each month in between. Anyway, I have no energy but am coming around a bit. My back is healing from the spine surgery. The chemo is not working.

    They are going to do foundation 1 genomic testing? Anyone have any info on this? Thanks, Paul

    in reply to: News about Cholangiocarcinoma Research #79724
    pauldetroit
    Member

    hello,

    I am trying to make sure I get the care possible and don”t know for example if my oncologist knows about this. I am stage four and struggling with gemzar and cisplatin among many other issues such as they had to fuse my spine cuz the tumor was taking over. I need help.

    I am in round five of chemo treatments. Cant hardly eat. Doc says cancer is spreading and chemo not really working, but why am I continuing?

    he says I do foundation 1 treatment next? I trust my doctor, but just want to make sure i am doing everthing i can.

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