pcl1029

Hi,
Money is not the point and never should be in the calculation of treating cancer; but I do understand where you come from and why you mentioned about it.
If I may, as in my own case , millions or more will not buy me one more day on earth if is not by the Grace of God to allow it happens.
I always know the extension of my life is not depending on what I did,do or will do to the community,such as this one butonly by the Grace God dispenses to me.
God bless,

Hi, Bruce,
In your data collection of our members; do you keep track of patients who have lymph node involvement ,the regions(mediastinal ,hilar or mesenteric),number of the lymph nodes and the next organ that will be affected based on the regions( the direction of metastasis based on the lymph node first metastized from the liver.) .
God bless

Hi, Gavin,
thanks for this article.
God bless.

Hi,
There are a couple choices that I can suggest,but please know that I am only a patient and not a doctor.
1. Since I recently discover my cancer has returned and has lymph node involved. I have consulted by an interventional radiologist that they can treat my lymph node by IRE, and kill the cancer spread. Miami hospital is one Of the best to do that and Baptist hospital in little rock AR. does IRE too. It is relative a simple procedure if they accepted your case since your husband has a few more. They also can use this procedure IRE to treated the tumor in the liver and other soft tissue like lungs.
2. A second choice is PEI to the lymph nodes, it is not a long term solution, it may need to do a couple more times on the same site to prolong the disease control,it is not a cure but much better than taking chemotherapy forever.Few side effects . Chemotherapy of GEMOX, or Xeloda and Gemzar ,both can increase the peripheral neuropathy. However, Gemzar with carboplatin will not be that bad with regard to neuropathy but I don’t think your oncologist will approved because of the bone marrow situation that your husband had. Taxol is too toxic in your husband’s case.
3. If I may, I will agree with your husband not to have chemotherapy . It is not as effective as what you think and the patient really suffer the side effects deeply; it ,in the long term sense will weaken the functions of other organs in the body,like the kidney,bone marrow,lungs,the immune system and ovary among others. In short, the cost of using chemotherapy at the current situation is not the best way. (15-28% in general). But there is an other option of joining clinical trial like #46 on the webe site or it is called TIL immunotherapy thru NIH and it is free if your husband qualify. If nothing works, Sorafenib was recommended to me as an oral TKI agent to extend my life for a short period of time, usually 3-6 month and if resistant develop,then he can switch to other kind of TKI oral medication and hopefully by that time the PDL-1 immunotherapy agent will be approval( should be later this year or early next year if no other problems developed, and the side effects are much less since this new agent helps your husband s own body immune system to fight the cancer. There are still hope out there ,good luck and
God bless.

Hi,
I really think you do not need to concern too much about the discomfort you wife has now; fatigue,lost of appetite, nausea and some pain and fever is expected.
Make sure her fever is alomst the same every time you take her temperature, and large spite >101or 102 should inform the doctor for consult, give Acetaminophen will help both pain and temperatureand hydration is important too.
God bless.

hI,
I agree the comparation of the eco enviroment and the microenviroment and macoenviroment between trees and cancer cells.
Yes, it seems there are no relationship between them at all; But deep down it is not that much in difference between the western medicine and the practice of the Chinese herbal medicine. ( using organ systems approach to treat single disease first then specialists are used for each additional problem ; as compare to treat the body as a whole first then each problem at the same time.)
New effort in research by the big Pharma and NIH have been toward the immunology (IE: develop anti-PL1 antibodies to unlock the vase amount of immune T cells in our bodies hold up by the PL-1 ligands on the surface of the cancer; by treating cancer in this way, it is natural since the T cells are part of our own cells ,with help of the anti-PL1 imunotherapy, it may come close to treating the cancer with the approach of using the concept of the eco enviroment applying to trees and the Chinese concept of treating the body as a whole for disease without the major side effects and better treatment results. Let see whether this development will be the cure we all are looking for.
God bless,
God bless.

Hi, Linda
I am sorry, it should be IMRT instead of IBRT, my mistake.
IMRT will not be the choice of multiple small and diffused tumor.
The logical choice is the radioembolization and northwestern university here in Chicago is the pioneer in this field,get a second opinion from their interventional radiologists. But, listen carefully of what they will recommend and ask questions.
I, personally at this point still neutral on this treatment. It looks good on paper, but in reality,like members on this board who had done radioembo, the results did not match what the medical journals reports.
It may be due to the patients selection;it may be due to comobidity,it may be due to residual radiation ( 3mm in diameter from manufacturer info. Rather then 3-20 mm as mentioned in some articles I read.) And thus the liver will accumulate more radiation than just 3mm of radiation for each bead. And this may be one of the reason I have a lot of concern about radioembo. Liver is a very sensitive organ to radiation. Good and

God bless.