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Viewing 15 posts - 136 through 150 (of 162 total)
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  • in reply to: Shock and augh! #53602
    peggyp
    Member

    Hi Robert,

    There is always hope; attitude plays a major role in fighting this disease. My husband, John, was diagnosed just over 3 years ago with Stage IV intrahepatic CC. He had no symptoms other than a small pain in his right side. He had a resection and his tumor was the size of a softball. They took 70 percent of his liver, right kidney, gallbladder, part of stomach, and part of colon during his surgery. The surgeon thought he was just going to be removing the large mass in his liver. Boy, was he surprised! Long story short, within seven months he had multiple tumors in the part of liver that was left. He has been on chemo treatments since March 2009. We take one day at a time and John continues to make himself do as much as he can each day. We are scheduled to see a specialist at Georgetown on October 17 as John’s scans in August showed the disease is progressing, but we aren’t ready to give up the fight. We also have two kids at home that we are raising (our grandchildren); a very active 8-yr. old boy and a soon-to-be 14 yr. old girl. Everything we do is centered around them. In fact, I believe they are what have kept John here this long besides the grace of God. He loves them so much and wants to make sure they get to experience things he feels they might not get to if he wasn’t here. So draw strength from your family and try to stay positive; and may God bless you and your family during this trying time. PeggyP

    in reply to: Staring a new clinical trial..HELP #52668
    peggyp
    Member

    Hi Lainy and Gavin,

    We just got back from the oncologist’s office and he is trying to get us an appointment with a Dr. Jimmy Wang at Georgetown. He said there had been no change on the scans but he is concerned about John staying on the gem/cis/avastin because of the effects it has on the kidneys. John had his right one removed when he had his surgery. Also, because his platelets drop so low, he feels that he needs to switch to something else. He mentioned Xeloda (I’ve seen that referred to on this site). I guess I’ve got my research cut out for me–trying to find out about Dr. Wang and Xeloda. The oncologist did say he didn’t want to do anything else until we have met with Dr. Wang, although he did schedule him to get Avastin on Monday. At least I feel better knowing that now we are finally going to meet with someone who has more experience with CC. Thanks to you both for your positive thoughts. PeggyP

    in reply to: First Scan after surgery reveals new tumors #53347
    peggyp
    Member

    Sissy,

    Just wanted to chime in and tell you not to give up. Keep pressing your doctors about other options. Just like Marions said, I’m sure they can try another chemo treatment that might have a different outcome. Stay strong and keep fighting. Sending good vibes your way, PeggyP

    in reply to: Well, it’s finally time to get started #53377
    peggyp
    Member

    Hi Byron,

    I hope your treatment goes well tomorrow; my husband takes gem/cis/avastin. Other than low counts, he has had no problems with this regimen. We go tomorrow for results of his latest scans which were Monday. I will keep you in my prayers, PeggyP

    in reply to: Looking for Help #53392
    peggyp
    Member

    Dear Joe,

    Attitude plays a big part in fighting this terrible cancer. My husband was diagnosed just over 3 years ago with Stage 4 intrahepatic CC. They told us if surgery didn’t take care of it, we had no other options. John had 70 percent of his liver removed, his right kidney, gallbladder, part of stomach, and part of his colon all at the same time. The surgeon thought he had gotten everything but at his 3-month scans, spots showed up on the part of liver that was left. They decided to wait until his next 3-month scans and by that time he had multiple tumors. The surgeon acted like there was nothing that could be done but John’s oncologist talked with other doctors around the country and they decided to treat him with the chemo they use on metastatic colon cancer. He tolerated this very well until his 17th treatment and then had a very adverse reaction. The oncologist is now treating him with gemzar/cisplatin/avastin. He just had scans on Monday and we go tomorrow to meet with the oncologist to find out the results. His August scans weren’t good and the oncologist said he would check to see if there were any trials that John qualified for. I’m anxious to find out the results. All I can say is don’t give up; stay strong for your mom and keep fighting. Sending good wishes your way, PeggyP

    in reply to: Staring a new clinical trial..HELP #52664
    peggyp
    Member

    Hi Whitrockj,

    I’m sorry your mom was not able to start her trial. My husband, John, has Stage IV intrahepatic CC. We see his oncologist tomorrow as he just had scans on Monday. His last scans in August were not good; his oncologist told us he was going to check to see if there were any trials that he might qualify for. I’m anxious to see if there are any trials and also, if these scans show any change from the last ones. John is taking gemzar/cisplatin/avastin now. I will keep your mom and your family in my prayers. Try to stay positive and keep fighting the fight. PeggyP

    in reply to: Our father just diagnosed with bile duct cancer. #53259
    peggyp
    Member

    Hi Tommy,

    I’m so glad your dad is feeling better and I hope he is able to get his treatment tomorrow. Don’t be alarmed if his counts are low; John’s counts usually drop too low and he has to get a shot and wait 14 days after that before he can get his next treatment. Surprisingly, last Monday, he was able to get treatment after having it the week before. They said he was borderline but couldn’t reach his oncologist, so they went ahead and gave it to him. Tomorrow morning we have to talk with his oncologist to see if he has come up with any other options for John. He had scans on Monday so I’m anxious to see if anything has changed since the ones he had in August. They were not good. This is a learning experience for all of us; so just hang in there, take it one day at a time and keep fighting. Good luck tomorrow, PeggyP

    in reply to: Our father just diagnosed with bile duct cancer. #53257
    peggyp
    Member

    Tommy,

    John always says he feels bloated after eating and doesn’t feel like doing anything. Sometimes, he says food just doesn’t appeal to him. He tries to think of things that he might would eat so we usually choose our menu around what he prefers. He really hasn’t had a problem with his appetite except on days right after he has treatment. I know when he tries to sleep, he usually always puts a pillow against his stomach because he says his stomach aches. I’m glad to hear your dad didn’t have any problems with the chemo. Does he have another treatment this Friday? If so, I hope that goes well for him, also. PeggyP

    in reply to: Our father just diagnosed with bile duct cancer. #53250
    peggyp
    Member

    Dear Tommy,

    My husband is on gemzar/cisplatin/avastin right now. He has never gotten sick from it but he does get very tired and weak. His blood counts and platelets drop very low so he usually has to get a shot called neulasta before he can receive his next treatment. He still gets up very early in the morning and does as much as he can but will rest when he needs to. Sometimes, he goes to bed around 6:30 but most nights around 8:00. He doesn’t like to take medicine but he has been taking the nausea medicine lately because he says the nurse told him it would be better to have it in his system just in case. Also, he usually has his worse days two or three days after chemo. He doesn’t sleep very well during this time so I might find him napping in another room if I go looking for him during the day. My husband is Stage IV intrahepatic CC and was diagnosed a little over 3 years ago. The first chemo treatments he was on, he had to wear a pump for 48 hours and he was very sensitive to cold. After an adverse reaction, they switched him to the gemzar/cisplatin/avastin. They told us that this was more toxic and he would have more side effects, but to be honest, he hasn’t had near the problems that he did with the other chemo. Hope this has helped you some and I hope that your dad will do well with his treatment. Let us know how he does. PeggyP

    in reply to: The Endgame #52867
    peggyp
    Member

    Dear Adam,

    I can feel your pain in your posts. Petra is very lucky having such a supportive husband and father of her children. I pray that she will get better soon and the doctors will find a treatment that will help her. My husband is Stage IV and he continues to fight the fight. He will have scans done on Monday as his last scans were not good and the oncologist said we were running out of options. Just know that there are others out here that know what you are going through and we are keeping your family in our prayers. Hoping tomorrow will be a better day, PeggyP

    in reply to: Donations Be Given In Honor Of My Mother #53285
    peggyp
    Member

    Dear Pgaska,

    My sincerest condolences to you and your family during this difficult time. Your mom is at peace now and will not suffer anymore from this terrible disease. May God bless each of you, PeggyP

    in reply to: My beautiful daughter #53129
    peggyp
    Member

    Dear Pam,

    I am so sorry to hear about your daughter Lauren’s diagnosis. My husband John was diagnosed a little over three years ago. His only symptom was a small pain in his right side, too. His doctor thought it might be a kidney stone, but after CT scan showed a huge mass in his liver, we went through numerous scans and tests plus biopsies and he was operated on at UVA within a three-week timeframe. His surgeon called me from the operating room and said they were dealing with more than he had anticipated. The surgeon ended up removing 70 percent of his liver, his right kidney, gallbladder, part of his stomach and colon. They told us this was his only option and that chemo or radiation weren’t options. The surgeon thought he had gotten everything but that was not the case. On his 3-month scans, two spots showed up on the part of the liver that was left. Thinking it was blood spots from the surgery, they waited until his next 3-month scans and by that time he had multiple tumors. Asking what his options were, the doctors were at a loss. They finally decided to treat him with the chemo they use on metastatic colon cancer patients. It sounds like what your daughter is on because after receiving chemo at the cancer center, he was also hooked up to a pump for 48 hours at home. He did fairly well on this until his 17th treatment and he had a very bad reaction to it. His only complaints were his sensitivity to cold, headache, constipation, weakness and tiredness. He is now on gemzar/cisplatin/avastin but has never been able to get it like he’s supposed to because his counts drop way too low. His oncologist is now checking to see if there are any clinical trials he could get in. He says we are running out of options. John keeps busy doing whatever he can, and rest when he needs to. I think attitude plays a major role in how people react to this cancer. Just continue to give Lauren all the support that I know you will and help her keep a fighting spirit. I am now checking into other alternative treatments because I’m not ready to give up on the love of my life. We just celebrated our 36th anniversary, and I hope to see many more. My prayers are with you and your family and especially Lauren. May God bless each of you, PeggyP

    in reply to: My Mothers update #53180
    peggyp
    Member

    Dear Sajdyk,

    My condolences to you and your family; may your mom’s journey be an inspiration to others. She is now at peace. With sympathy, PeggyP

    in reply to: Doug Jensen #52932
    peggyp
    Member

    Dear Nancy,

    I am so sorry to hear about Doug. My heart and prayers go out to you and your family. I know you will always cherish those last few hours that you and your children shared with him. He is at peace now and will continue to watch over you. May God bless you during this difficult time. Many hugs, PeggyP

    in reply to: Drainage after liver resection? #52823
    peggyp
    Member

    Dear Kdhokie,

    I, too, live in Virginia; my husband John has Stage 4 intrahepatic CC. He was diagnosed in July 2008 and operated on in August 2008 at UVA. His tumor was the size of a softball. Since then, he has developed multiple tumors and has been treated with chemo. Yesterday, we were told by his oncologist to get our affairs in order. John is 58 and next week we will celebrate our 36th anniversary. I can’t imagine my life without him. His oncologist did say that he was going to talk with some other doctors to see if there are any clinical trials that he may qualify for. I will pray that your mom will get along well with her treatment. Just continue to fight alongside her during this trying time. PeggyP

Viewing 15 posts - 136 through 150 (of 162 total)