Forum Replies Created

Viewing 15 posts - 31 through 45 (of 162 total)
  • Author
    Posts
  • peggyp
    Member

    Dear Percy,

    I am so sorry to hear about the loss of your dear sister-in -law, Helen. Please accept my sincere condolences and I will keep you, your family and Helen’s in my prayers. You are such a good person and I know that you must have been a tremendous help to Helen during her journey. Helen is now at peace and in a much better place. Rest assured that you will meet again, PeggyP

    in reply to: Light at the end of the tunnel so to speak… #59319
    peggyp
    Member

    Hi Derin,

    Sounds like a good weekend ahead for you. Hope you have fun at the party. It’s funny but John’s onc never told him not to drink. He acted like wine or beer was fine–just don’t overindulge. Bet the kids were excited about catching the fish. Kaden loves to fish; in fact, he would stay out all day long if he could. You have been so strong and upbeat through your journey with CC and hopefully everything will look great on your scans. I hope you will continue to post as I have enjoyed reading what you have written. Hugs, PeggyP

    in reply to: Unusual Cholangio Guy – Survivor Against the Odds #59220
    peggyp
    Member

    Hi Jeff,

    No, you didn’t respond to me; I feel so slighted. Ha! Ha! You have added a little something different to this site. I believe someone called it spice. Keep writing as I think you have gained a lot of fans. Oops-got to run; 14-year old just called that the bus is close to school. She had softball game out of town. Will catch up with you later. Hugs, PeggyP

    in reply to: Intro #59144
    peggyp
    Member

    Hi Les,

    Sorry to hear about Sarah, but you have come to the right place for support and information. My husband, John. has Stage IV ICC. He was diagnosed in August ’08. Up until that time. he had been very healthy; ran 4-5 miles at least 3 days a week and worked out at Gold’s Gym. His first symptom was a nagging little pain in his right side. He had a resection and the surgeon ended up removing his gallbladder, over 70 percent of his liver, right kidney, part of colon, and part of stomach cavity. In March ’09 he presented with multiple tumors in his liver. He has been on three different chemo cocktails and just had a chemoembolization done four weeks ago. Gem/Cis was affecting his kidney function so he had to stop that. Just as the others have said, Sarah is in good hands, so stay strong and positive as I believe attitude plays a big part in fighting this cancer. Sending well wishes your way, PeggyP

    in reply to: Hello #58891
    peggyp
    Member

    Hi Matt,

    I’m glad to hear that your sister is going to Mayo and has a concrete plan. The doctor’s credentials sound good and you sound more confident with him. You’re right, CC is a war. It’s very scary, like a roller coaster with all its bumps and curves. I will keep Virginia and you in my prayers and hope that the waiting game won’t seem like forever. PeggyP

    in reply to: Unusual Cholangio Guy – Survivor Against the Odds #59186
    peggyp
    Member

    Hi Jeff,

    Welcome to the family! Your introduction was interesting and I look forward to your future posts. You’re right about the medical costs–outrageous. I know we have spent over $50,000 out of pocket so far, and the bills keep coming. My husband is the one with ICC, and I would like to keep him around, so I guess we will continue to pay for as long as we can. And, we’re not rich by any means. Keep your positive attitude because I believe that plays a big part in fighting this beast. Sending well wishes your way, PeggyP

    in reply to: Resection scheduled for April 4 #59261
    peggyp
    Member

    Hi Kris,

    Glad to hear that you are going out to have some fun and take your mind off worrying about your resection. Hope your cough is gone by then, but remember to press a pillow against your stomach if you have to cough after your resection. It helps ease the pain. Go dance the night away and have a good time. PeggyP

    in reply to: Chemotherapy and Itching #59271
    peggyp
    Member

    Hi Summergirl,

    My husband has ICC and started out with Folfox. Then he was on Gem/Cis and then Xeloda. Four weeks ago he had a chemoembolization. He never really complained with the itching but I have read where other people had the itching. John was only jaundiced once and that was after he had his resection. That was in August ’08. So, there are other options out there. Sending well wishes to your mom and welcome to you, PrggyP

    in reply to: Question about Common Bile Duct Stricture #58980
    peggyp
    Member

    Hi Teresa,

    I am very familiar with Chesterfield. I used to drive from Staunton to Moorefield Park to attend business meetings. Now, I have a sister-in-law who is living in Chesterfield. Small world. My husband has a friend from highschool who had a liver transplant done at one of the hospitals in Richmond. I’ll try to find out which one. I know you will love Dr. Adams, and I so hope that you get in fast. Love, PeggyP

    in reply to: More chemo needed for new liver tumor #59087
    peggyp
    Member

    Hi Lisa,

    The first chemo that John was on was Folfox for two cycles and then Avastin was added for ten more cycles. He had significant response so Folfox was discontinued and he only had Avastin every other week until his scans showed progression. He was put back on Folfox with Avastin but near the end of his sixth cycle had severe back pain. At the beginning of his seventh cycle, he started shaking with chills and they had to stop and kept putting heated blankets on him. They attributed this as an adverse reaction to the oxaliplatin. The side effects that John had were: sensitivity to cold, tingling in hands and feet, and fatigue. Since then, I have been told that the Avastin causes a lot of fatigue. Actually, we thought that he did very well with the Folfox until he had to quit. He was on this from April ’09 until the end of August ’10. Hope this helps, PeggyP

    in reply to: Husbands cc #59135
    peggyp
    Member

    Hi Teresa,

    Welcome to the family that no one wants to belong. My husband also has ICC. We live in Virginia so you’re not that far away. You will find a lot of support and love from this site and tons of information. Sending lots of good wishes your way, PeggyP

    in reply to: Stepmummy’s surgery today #59093
    peggyp
    Member

    Duzalot,

    Sounds like great news to me! Hope your stepmum will be up and about in a few days. I know you must be so relieved. Sending lots of good wishes your way, PeggyP

    in reply to: Lumpectomy was negative #59102
    peggyp
    Member

    Lisa,

    I am so relieved that everything was o.k. Now, you can get back to kicking CC’s butt. Best wishes, PeggyP

    in reply to: Complications of xeloda #59070
    peggyp
    Member

    Hi Fatema,

    My husband has had a cough ever since he has been on chemo. Sometimes, it’s more noticeable than at other times. His last chemo that he took was Xeloda and I remember that he did seem to cough more then. I’m glad that your mom was able to have the Y90; John wasn’t a candidate for it because he had too much leakage into his stomach cavity. He did have the chemoembolization done about four weeks ago and we will return to UVA Thursday for him to have an MRI and find out the results of his procedure. Keeping you and your mom in my prayers, PeggyP

    in reply to: Question about Common Bile Duct Stricture #58976
    peggyp
    Member

    Hi Teresa,

    I’m another Virginia gal. My husband was operated on by Dr. Adams in August ’08. You will be very impressed with him. He is very straightforward and honest with you and answers all your questions, good or bad. He told us had John not been in as good of shape as he was, they probably would have done nothing. John asked him how he could stay in surgery so long, and he said he loves it. In fact, he said John’s case was a challenge for him and when he heard about it, he looked through his calendar to see if he had any openings because he’s usually booked six weeks out. From the time John saw his doctor until Dr. Adams operated was three weeks. And we had to have a lot of different tests done during that time. I actually had to hand deliver the final test results to Dr. Adams the morning of the surgery. So, I will agree with Eli and say that your mom will be in good hands with Dr. Adams. Hope you can get in quickly and that your mom will get some relief. Good luck, PeggyP

Viewing 15 posts - 31 through 45 (of 162 total)