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Viewing 15 posts - 1 through 15 (of 106 total)
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  • in reply to: Six weeks since I lost my sweet husband #68255
    peony
    Member

    Thank you all so much.

    in reply to: BURZYNSKI CLINIC #68167
    peony
    Member

    Jen , my husband had mets to the spine and had terrible pain. After trying many different options he finally went on methadone with oxycodone for breakthrough pain.

    Sorry for what you are going thru. Sending Hugs of support your way.

    Laurie

    in reply to: Wanted to share #67711
    peony
    Member

    Lynn, it sounds like you had a beautiful service for George. My thoughts are with you.

    Laurie

    in reply to: georges journey has ended #67458
    peony
    Member

    Oh Lynn, I’m so very sorry to hear about George. I lost my Dan only 2 weeks ago so I know what your going through. You were a wonderful caregiver and did everything you could to make George’s last days good ones.

    I’m hope you find the strength to get through these next several weeks and try to remember George as he was before this cancer took over your lives.

    Xoxoxo
    Laurie

    in reply to: Dan has taken a turn for the worse #66919
    peony
    Member

    Thank you darla and thank you lainy. Lainy you can email me.
    Dans sisters are here . They are all very close. He’s in and out but he knows they are here. I will continue to talk to him.

    Laurie

    in reply to: strange side effect,or normal??? #66482
    peony
    Member

    Oh!!! Wish I could get an electrolite drip for myself. Haha

    Enjoy it Lynn.

    in reply to: Freaking out about MRSA Staph #66428
    peony
    Member

    Hi ilias, sorry to hear about your mom. I hope she can get back to her chemo regimen soon.

    We went back to the dermatologist this morning because of the new rash and she diagnosed eczema as the underlying condition. Eczema rashes often develop into staph. So now he is on a topical steroid as well as the Bactroban. We ran it by hospice and we are on the right track.

    I’m feeling a little less freaked out about it after talking to the doctor.

    Just another obstacle to overcome while waiting for the next one :(

    in reply to: Response to Alla’s posting #65467
    peony
    Member

    Dear alla, I’m deeply sorry for your loss. My prayers are with you and your children during this difficult time.

    Laurie

    in reply to: what now #65624
    peony
    Member

    Hi Lynn, my husband is on hospice at home and I can tell you that’s it’s a huge relief to have them involved. We hav 1 dedicated nurse and she has done a tremendous job in helping to keep Dan comfortable. Also you can call them 24/7 for help. Before I felt that I was in limbo and all alone making every decision.

    I’m sorry for what your going through. Sending you lots of hugs of support and strength.

    Laurie

    in reply to: First post #65327
    peony
    Member

    Hi Alla, constipation was a huge issue for my husband. It was the reason for one of his hospital visits. Suppositories, enemas and that colonoscopy drink didn’t work. The hospital gave him go lightly , senna and a ducalex suppository and it worked. Now he is on 6 senna a day and miralex daily and no more constipation. I think its a matter of finding the right cocktail that works.
    I’m happy to hear the dilaudid is working for him.

    Stay strong.

    in reply to: First post #65321
    peony
    Member

    Hi Alla,

    Pain control has been a huge issue for my husband as well. He was diagnosed in October 2010 , Stage IV with mets to the spine, omentum, lungs and liver. He was addmitted twice to the hospital to get the pain under control and also was seeing a pain specialist. He is now on hospice and taking 60mg 3 x daily of Methadone, 90mg every 4 hours of oxycodone and neurontin for pain. The pain never seems to go away but is mostly at 5 which he says he can tolerate.

    I know how difficult it is to watch them suffer and writhe in pain. It’s been the hardest thing for me to deal with.

    If the methadone doesn’t start to work I think morphine is the way to go.

    Just the opionon of a fellow caregiver.

    Good luck and keep us posted.

    Best,
    Laurie

    in reply to: Can’t move arm #64980
    peony
    Member

    Thanks ladies. Lainy we called hospice in about 2 weeks ago. They are great so far. It’s such a relief to have someone to reach out to 24/7. The nurse that is assigned to us is incredible. They’ve made adjustment to his medications that have already helped to reduce his pain.
    Fractures are very common with bone mets. He has several rib fractures. The one in his shoulder blade is unusual.

    Marion, I remember reading some of Jeff’s entries on mets. I will take another look at the links for anything that may help.

    Best, Laurie

    in reply to: Can’t move arm #64977
    peony
    Member

    The cat scans showed multiple fractures in the scapula caused by new tumors. Unfortunately radiation to shrink the tumors would be too dangerous so the only resolution is to increase the pain meds and imobilize the arm.

    Dan is home now and resting. He is definately declining. So, starting next week I will be on family medical leave from work. This will be the first time in over 30 years that I haven’t worked everyday of the week. It will be strange but I need to spend time with him.

    in reply to: Can’t move arm #64974
    peony
    Member

    thanks everyone, we’re in the hospital and had 2 cat scans. hopefully the mystery will be solved tomorrow.

    in reply to: Doug Jensen #64813
    peony
    Member

    Hi Nancy,

    Congratulations on the success of your fund raiser.
    Hard to believe it’s been a year.

    My thoughts are with you.

    Laurie

Viewing 15 posts - 1 through 15 (of 106 total)