perthwa
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Hi Genevieve
If you could please give me the Dr’s name and contact details that would be fanstatic. My mother’s condition is still very good and flying from Perth to Sydney would not a problem at all.
Thank you very much for sharing this information.
Kylie
XHi Marion,
Your memory serves you well, my mum does have a mental stent once she was diagnosed.
Can the stent be removed if surgery is an option.?
I was thinking of having mum talk to her GP with regards to maybe a referral to a surgeon for a consult.
Kylie
Hi
My mum was diagnosed with Intraheptic CC in May of this year and she too had trouble with her first biopsy. Mums first biopsy results can back inconclusive which was very distressing for all concerned, especially mum. Not only were my mums biopsy inconclusive, but she also has a bleed. After a week later and a lot of pain and discomfort mum had another biopsy and the news we did not want to hear came to us. We were told that a biopsy was the only way to clarify what time of tumor we were dealing with.Mums tumor too is inoperable so a mental stent was inserted into her bile duct and within a week mum was at home resting with hardly any jaundice signs. My mum started her chemo four weeks later (June) with Gemcitabine (Gemzar) and Platinum.
Thinking of you and your family at this difficult and frustrating time.
X
Hi Janet
It’s nice to hear from a distant person that mums chemotherapy is being managed exactly as it should be then. It’s always hard to hear, even though we have had two opinions on treatment. Mum lives three hours south west of Perth at the choice of oncologist was very limited for us.
So we wait for the next scan and see how mum responds to chemo.
Thanks
Kylie
XHi Gavin
My mother’s stent is working very well now, thanks for asking.
I look forward to hearing from other Aussie’s (Australians) with their loved ones story and or an association with Intrahepatic Cholangiocarcinoma.
Thanks for the heads up on the clinical trial link. Will endeavour to search through.
Kylie
XHi Nancy
We were told whilst mum was in hospital having her stent put in the bile ducts that a resection could be an option for mum should the cancer clear from from lymph nodes, but we won’t know if the chemotherapy treatment is successful until mum’s 3 month scan.
My only concern here is that when we asked about the resection should chemotherapy be successful with the lymph nodes, they didn’t seem very positive. It was almost yes we can do it, but it’s unlikely that it will happen given the nature of this type of cancer.
So once again, we have all our fingers and toes crossed that the chemotherapy is working and that mum will be able to have a resection of the liver. I pray for this outcome each and every night, however just one day at a time…
Kylie
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