peter

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Viewing 15 posts - 16 through 30 (of 190 total)
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  • in reply to: (CFIDS) Anger a Frequent Companion #19197
    peter
    Member

    There’s also the Kubler Ross stages. How’s it go
    Denial
    bargaining
    Depression
    Anger
    Acceptance

    something like that.

    in reply to: Triphendiol #19177
    peter
    Member

    Hi Kris,
    Yup, I do it too. Although I’ve never had the hutzpah to admit it publicly…..

    Pancreatic and CC are both adenocarcinomas. And the AC’s = badguys!

    Has anybody out there seen and read “Crazy Sexy Cancer Tips” by Kris Carr? Actually, it’s a film as well.
    http://www.crazysexycancer.com/

    Slanted more toward women but she has a great attitude and it’s a uplifting light read after all the pubmed slogs we try to get through some days.

    -Peter

    in reply to: Maine Coast Sea Vegtables/medicinal/botanical #19087
    peter
    Member

    I eat them regularly. My strong second to Jeff’s microwave cautions.

    in reply to: Stage IV – Bile duct/liver/lymph nodes #18784
    peter
    Member

    dzkh
    Have you gotten a second and third opinion on surgery? Klatskins can sometimes be surgically removed, there are a number of us here who have had it done, but you have to find a surgeon who has the experience to do it. Not everyone is fortunate enough to have this option but as it is the best hope for quality and longevity of life it should be pursued.
    Try a search at the top of this screen on ‘second opinion’ and you’ll find a lot of information.
    -Peter

    in reply to: Four years +, alive and kicking #19035
    peter
    Member

    Run on Kristan. And I don’t mean your sentences. : )
    Love to hear the survivor stories and another great attitude. Thanks for sharing.
    -Peter

    in reply to: Itching, itching, itching #19060
    peter
    Member

    How are his liver numbers? Particularly the billey. Itching can be caused by jaundice.
    It may be worth consulting a GI/Liver specialist. There are medicines they can give for the backup of bile salts, Ursodiol is one, that may help.
    Many of us here have tried all kinds of topical help with some varying success. I never got a lot of relief but Bag balm did seem to help.
    It’s an unpleasant side effect especially because it can make it impossible to sleep.

    Hope this is useful,
    Peter

    in reply to: What’s helped me #19074
    peter
    Member

    Great post Kristin. Thank you!

    Jeff, If you tried acupuncture, and asked nicely, they might let you keep the needles in while you’re hanging out on the beach in your new swim suit.

    -Peter

    in reply to: hope on the horizon #19013
    peter
    Member

    Jules,
    Nice to see your name pop up. I’ve been thinking about you as well.

    What can I say. I too believe there is hope on the horizon. I’m pretty sure that hope is going to come from one of the new areas of research, specifically immunotherapies that somehow learn to distinguish the cancer cells and then new tools for our bodies to fight off this disease.

    Dr Cul’s work sounds promising. Thanks so much for the link.

    And take care of yourself!

    -Peter

    in reply to: Lymph node puncture test #18973
    peter
    Member

    We love ya Kris and at this point we all have thick skin!

    Maybe the doc will pay attention next time and get the anesthesia right. I’ve never had the procedure so can’t help there.

    -Peter

    in reply to: Help, My mum has nonresectable CC #18681
    peter
    Member

    Second opinion on surgery
    Second opinion on surgery
    Second opinion on surgery

    Search this site for Docs in UK and members with experience there.

    Sorry to be abrupt. I only have a minute.

    -Peter

    in reply to: What to expect post surgery #18944
    peter
    Member

    Belle,
    My klatskins surgery was similar to much of the above. Some thoughts or emphasis.
    I was up the next day sitting on side of bed and standing for a few minutes. tough but worth it. Walked the hallway the second day.
    Ascending Cholangitis is a common infection. Watch for the fever. Can be treated with antibiotics but can get bad quickly! I’m now on a maintenance dose of a sulfa drug. Used antibiotics for 3 years but switched to try to avoid developing resistence to antibiotic.
    Stool softners are essential! Start early. The constipation from narcotics was awful and so easily avoided. Docs really let me down on this one.
    I was home at about day 9 I think. Walking every day. Cleaning up after the drains. Get good training for caring for the drains until they can be removed. This is another common source of infection.
    I didn’t want to eat but needed to. Find foods she’ll like. We did smoothies with fruit, ice cream, spiralactone and some other goodies in the blender.

    Walk, keep the lungs working and blood flowing.

    Best of luck to you and your sister.

    Courage,
    Peter

    in reply to: Resection Successful #17271
    peter
    Member

    Nancy,
    Wonderful news and just the kind of encouragement we hope for many of the new folks who join our community each week to hear.
    We must advocate for our health care. Second opinions and finding the right hospitals and surgeons can make a huge difference.
    Have you tried the search function on the top of the page for your Chemo questions?
    -Peter

    in reply to: Dad just diagnosed at age 67 #18922
    peter
    Member

    Debbie,
    Just to reinforce what everyone else is saying. Small is good, Surgery is good. And surgery is KEY!!! If he’s eligible realize this is a gift not everyone gets as it can give him added years and quality of life.
    If you have any inclination toward alternative therapies in the NY area you should check into:
    http://www.meridianmedical.org/
    They are expensive and not covered by insurance in my experience but Dr Chang is trained in both eastern and western medicine, was on staff at Sloan Kettering and Cornell, and provides some other approaches to fighting CC.,

    -Peter

    in reply to: Combatting weariness & lack of energy #18930
    peter
    Member

    Steve, My experience in this area is that much of my tiredness and lack of energy was due to the chemo kicking the !@## out of my hemoglobin or hermaticric. These are 2 different numbers that both tell indicate when we are anemic or low on iron. My oncologist told me iron supplements wouldn’t work and wanted me to do the shots many of us take.
    In my case however regular iron supplements have helped and me hemoglobin has gone from low 8’s up over 12 again.
    Carol, Try using ‘Bagbalm’ on Charlie’s feet. My first few months onXeloda my feet were not only so sore I could only walk in serious pain they also peeled all the skin off. I took a break and when I went back on Xeloda I used the bag balm every day and my feet fared much better. Bag Balm is a lanolin based product, I beleive, that farmers have used for years on cows teats before milking but is pretty readily available as a salve for us two legged folks now.

    -Peter

    in reply to: feeling guilty about feeling good #18871
    peter
    Member

    Lisa,
    This is a post I wish I had had the presence to write. I feel so fortunate to have drawn a long straw but I feel so keenly the loss, pain and suffering of so many of us here.
    We are truly a community with all the love, loss, joy and pain of any family or community. Thanks for that reminder and I join everyone else in loving to hear your good news!

    -Peter

    p.s. If you all see less of me on this board for a while it is because I am away from home helping my 90 year old Mom who just fell. I don’t have internet where she is but will try to check in via a local library as I’m able.

Viewing 15 posts - 16 through 30 (of 190 total)