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Hi. I wanted to let everyone know I am donating part of my sales to the Cholangiocarcinoma Foundation. I will be donationg 10% of each sale in my Etsy shop! My shop name is Fired and Wired. I make hand-stamped jewelry.
I haven’t been on this site in quite awhile. I lost my best friend and mother, 8 years ago this September, to this cancer. I wanted to do something in her memory. I pray that one day there will be a cure. Prayers to all on this site!
- This reply was modified 2 years, 1 month ago by pgaska.
Thx Lainy for your input. This thought has me “wondering” a bunch too. I know there is a lot of crap we put in our bodies every day, even when we try and not to! Who knows…..just wondering if any others had CC & been taking actos. Interesting you got an even more rare cancer than CC!! Wow! Hope you stay healthy and it is gone for good!!! God bless you and your family this holiday season!
PamDecember 25, 2011 at 4:08 am in reply to: 1st Christmas without Mom though she is still here with us! #55960
Thx Lainy. Truly amazing is all I can say. Merry Christmas and haapy new year to you and your family!
My heart is breaking for you & your family. Cheerish every minute! I lost my Mom 2 months yesterday to CC. She got diagnosed in July. Time is precious. I spent every evening with my Mom when she got diagnosed. We are a close family, but this has only made a stronger family bond even more. God bless you and your family. Praying for a cure every day.
Mary, so sorry for your loss. What a fighter! I know how you feel, just losing my Mom. She was diagnosed in July & passed 2 months yesterday. Hard to believe it is already 2 months. I know what you mean when you say you were a wife and a nurse. I was a daughter and a nurse as well. I spent every evening with her since she started getting sick. Also searched endlessly on the internet and this site for as much info I could absorb. Her passing was of course awful, but a relief as well. I really didn’t know what to do after she left us. I was always, this summer, doing anything I could to help her & help her fight this terrible disease. We scattered some of her ashes yesterday in a beautiful river in SC that leads to the ocean. She loved vacationing there. We would all fish & crab on that dock. It was (& still will be) our family spot. God bless you & your family. This site has helped me heal & I know it is helping you too. Praying for a cure every day.
PamNovember 28, 2011 at 6:29 pm in reply to: My husband and Cholangiocarcinoma – The fight has ended #55092
So sorry to hear of your husband’s passing just recently. Your posts are so lovely. I just lost my Mom 2 months yesterday. We scattered some of her ashes yesterday in SC, one of her favorite places. We will be scattering some more in WI at a northern lake, Keyes Lake. Her Dad, my Grandpa, had a cottage on it. I still go there to enjoy the lake, though my Grandpa had to sell it in his later years. I am from WI, now residing in KY. I know how important deer hunting is to the men of WI. They say heaven is unbelievable and I am a believer it is. I’m sure he is hunting up there right now with other family members. There is a book, Heaven Is For Real, that is great. It is a near death experience of a 4 year old. It helped me a lot with my Mom’s passing. Heaven is real & every bit of wonderful as they say. Sounds like your husband gave a real good fight. Awesome how long he battled it. My Mom found out about CC in July & passed in September. All too quick for us. We had a family outing the night of her passing & burned a lot of her cancer stuff. My cousin took a photo of that night on his Iphone. He got a beautiful blue light up above us, Mom. I know it was. I knew she’s around us, but we had actual proof. Anyone reading this can go to my Facebook page (Pamela Gaska) and see that photo in my album, 1st photo click on. God bless you and your family during this difficult time. He is around you all the time & in a great place. Take care. Praying every day for a cure.
Thank you everyone. I truly was blessed to find this site during my Mom’s illness. Really appreciated the support and advice. God bless you all.
hi Marions. I do not the exact cause of her ascieties. Guess I need to find out. So much to learn while time is flying by!! So far learning from a lot of Drs. Her tumor is very large, so no operations or cryotherapies. Looking into diets while on chemo to hopefully shrink it down now.
Hi Marion. She actually hasn’t done any vomiting in awhile, though she has been off a wk of chemo. Her next treatment is Friday. When she was on chemo, she would vomit not too much. Just when she took a car ride or when her fluid in her stomach got to be too much. She gets it taken out every other wk or more when needed. Hope that gives you more info. Need all the help!!
I understand Christine, the thought of feeling helpless. My Mom has been recently diagnosed with cc. I feel like I’m running in place. She getting Gemzar at a local hospital. I know this is not the best treatment option. She was supposed to get cisplatin too, but her kidney level is not good enough to get that too. It was 1.6 & needed 1.5 or lower. I am just fustrated because time is flying by which she doesn’t have. Trying to search for surgeons & other options…Dr. Kato said no for operating. Talked to Dr. Kennedy’s office & they said prob. not a candidate for radiation therapy cause she ascertion (sp) liver fluid in her abdomen. Anyone have any ideas or suggestions out there?!
Thx Gavin. My Mom is just getting Gemzar at a local hospital. I know this is not the best treatment option. She was supposed to get cisplatin too, but her kidney level is not good enough to get that too. It was 1.6 & needed 1.5 or lower. I am just fustrated because time is flying by which she doesn’t have. Trying to search for surgeons & other options…Dr. Kato said no for operating. Talked to Dr. Kennedy’s office & they said prob. not a candidate for radiation therapy cause she ascertion (sp) liver fluid in her abdomen. Anyone have any ideas or suggestions out there?!
Thanks to ALL! Unfortunately surgery is not going to be an option. Was hoping it still could be.
Thanks to all! VERY helpful!! It comes and goes, her nausea. Will try the ginger root.
Hi jathy1125. Just read your story. Wow. Simply amazing. Very inspiring. Thank you for sharing it to me! Take care.
Awesome scragots! I see you are from Indiana, where did you go for treatment? My Mom has just been newly diagnosed and we live in KY. Going for ALOT of 2nd opinions (2nd thru 5th opinions if we need to). Just wondering your care & any info. of your situation if you care to share. I am going to be ALL over this forum. Looking for help & knowledge-the best power, besides God. This forum and site is awesome. So happy to chat with others with this cancer & their knowledge (and their caring families too)! It is priceless!! God bless you & MANY more fantastic scans ahead to you!!!