pgtips
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Hi Jemima
Thanks, I hope your Mom’s chemotherapy goes well – like you say I’m sure state of mind means that she will be in a better place to start the treatment having had such an enjoyable time.
Hi Andie
Thank you – we will try for a referral to the QE; glad you all had a great time in Wales. Hope we get to do that too…
At the moment, we are getting different messages from palliative care and medical staff over whether it will be possible for my Mom to go on the holiday BUT fingers crossed…. If not we will just have to try and re-arrange. We will hopefully know something more tomorrow.Thank you so much; the support we’ve already had on here means so much. My love and support goes out to you and your loved ones.
We will do all we can to make sure my Mom gets to go on holiday and I hope we can make it as enjoyable as the one had by Lainy and Teddy. x
Hi Gavin et al
Thank you again for the information and support; I’ve told my Mom about the discussion board and she was really pleased that there is something like this available.
The hospital will check my Mom’s stent tomorrow ( It is an expanding metal stent with external bag) and we think her jaundice is improving. Although she is now in some pain in her liver area.
I’m hoping to see her consultant this week and will ask him about a second opinion/referral to one of the hospital’s you mention (although from what I’ve read – I think the PDT trial is as you say suspended). If he isn’t too helpful (as long as the stent is working OK; we hope that she will be able to come out of hospital soon) and we will then discuss a referral with her GP – who is usually pretty helpful.
A couple of questions. From what we’ve been told it seems pretty vague about whether Mom will continue with an external bag (my Mom thinks they said it would be inside from Monday if working OK?) and although I’ve looked into it a bit on the internet – I’m still confused about what is normal procedure.
This next question may sound daft in the circumstances BUT my Mom was really hoping to go on holiday to Wales next week (with myself and my sister’s family). Obviously we are only going if she is able but my Mom has looked forward to this so much – is it possible timescale wise and if the stent is OK/jaundice gone etc., that she will be out of hospital and able to do this? One Doctor at the other hospital she was in – indicated it could be possible but I don’t know if they were being realistic or not…. AT THE MOMENT THIS IS ALL MY MOM WANTS TO DO and we want this to for her quality of life but obviously don’t want to jeopardise her health/treatment?
Thank you both so much for the information, advice and support and good luck to both of you and to Andie’s Dad for his chemo.
I hadn’t found the UK charity so will have a look at that ASAP and will also look into liver specialist hospitals. I would presume from your Dad being with the QE in Birmingham that they are perhaps liver specialists (?). Would I still need to look for these if the cancer is outside the liver(?) (although I think from other comments there has been some metastasis/spread/scaring to the liver)?
My Mom is from Shropshire and is being treated by the local hospitals thus far but is only about 40 miles from Birmingham.
Once again, many thanks.
