rain
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Hi Ilias,
It was quite hard to find but it is called bitter melon in Australia. We have bought way too much from a friend so if you need some am happy to catch up with you to give you some:)
Otherwise heard it can be found in footscray market or Springvale ( basically Asian areas)
Thanks for everyone best wishes
Kris,
From your posts you seem like a courageous and amazing woman.
Best of luck with the trial
Rain
Dear Rgreen
The recovery from a Whipples can appear slow. My father was in the hospital for 6 weeks however despite this long road (it took a while for his bowels to re-start working) in 6 weeks he was pretty much back to 100% and eating normally.
It was amazing to see. So I suggest that your Dad and your family give the body some time to delay with the surgery (which naturally is a big surgery) and ensure he rests enough.
I would trust the nursing staff on what he can and cannot do at this stage.
All the best
thanks Lainy and everyone for your feedback.
We just heard that my dad is KRAS wild type so it looks like he will start treatment next week (it was hard waiting while his CA 19-9 just went up and up however he was not allowed to start treatment before trial)
I got a second opinionj in Australia however bascially message was always the same; treatment is palliative only and seeing he has no symptoms maybe it is better to wait to be treated however if you like we can treat. As you can imagine this was not easy to deal with – you want to fight as much as possibile.
I know that the data regarding EGFR inhibitors hasnt been that great however I noted that Tiffany had also been prescribed Gem/Cis and Tarceva from Dr Javle whom seems to really know his CC hence I tought it was worth the try.
I just hope he is able to tolerate the treatment (I am flying to Australia next week to be there with him) In the meantime I am still awaiting to hear back from DR Kato & Dr Javle.
any other suggestions on what we should be doing to help him tolerate the treatment better or any alternative healing approachs would be most wlecome. We wait to do all possibile to give him the best chance
thanks again all
Thank you everyone for your support. I must say I check this site everyday…. Believe it is some type of coping mechanism.
We are still waiting his KRAS testing to see if he gets into the trial. However in the meantime I have sent emails to Dr Kato and dr Javle for their opinion. I hope they respond.
My fathers story is sometimes painful as in 2009 he was admitted to hospital because of abdominal pain and jaundice and they said it was a viral hepatitis (US revealed no dilation of bile duct). He had persistent elevated LFTs and finally he asked his GP to see a liver specialist. I always wonder if we had found the stones 9 months earlier if things would have been different. This specialist performed an MRCP and in the end in 2010 we discovered stones in the bile duct (no tumor at the time). In 2011 his LFTs went up again and we found the small tumor at the ampulla of vater. My father is so angry and he feels that the un diagnosed gallstones caused all the inflammation in his biliary tree and hence his CC. This is possible however we will never know.
Unfortunately this situation has also lead me to become a little distrustful of the medical system and I feel I have to re- check everything myself.
I would like to thank everyone for the support on this site. I also hope I can soon give such support back.
