rhike

To All:

My son who is 45 years old has only a few days to live. He has CC since Novemer and I wished that I had taken hin to a Cancer center in NYC.I believed in the local doctor and the oncologize who gave Patrick 6 treatments of gemzar. He was so sick that he lost 50lbs on this chemo treatment. My son was so weak that I didn’t get a second openion for a resection of the tumor as I didn’t know where it is. I hate the gasto doctors and the oncologist doctors who did not informed me to go to a cancer center where my son could have had chemical trials, I have a lot of momey that has got to keep this disease broght to attention in this country.So my son stop taken the chemo because it was making him too sick and weak to go to another second opinion and I got no help from the oncolotist from the beginning that this was a diseae that was more than she coul handle. Four months of suffering for my son and for John and I as his parents. People who come out with this disease must be warned that GENZAR AND CISPLITIN DO not work for this disease. I should have let my son enjoyed his 2 months on quality life he would have had and would be dead by now. I want to write in the local papers what terrible care he got at Samairtian Hospital in Troy, NY. I left my son on Monday night in such terible pain as the 5 liters of water that was in his chest was drained and was having the hicups for 7 hours without relief or meds.He stomach looked liked he had a baketball in him. Tuesday morning he was on hospice. Lovely lopspice told me before I walked in the room to see my son that he would propably never be able to talk to me again. Something happen and they put him on continous drip of dillotin, starting at 1.5 yesterday which is up to3 mg. per hour.He has has no food or water in three days. He is just being drug to death by the drugs are going in his body like herione and this is the comfort of care. My son has sleep for 48 hours and was given 4mg of dilation tonight every hour. I know they just want to drug him to death!! My son is out of his mind with these drugs, no food, or water. He won’t open his and doesn’t know me. They are treateing him like he is 80 years old. I wanted to share this message for people who think that hospice is great for this disease but its not and do not use any chemo. My son’s stomach has distended so much that he has a basketball and fluid is coming in aagain.
any ADVICE FOR ME TO DO. i GUESS THAT i MUST ACCEPT HIS DEATH, BUT WISH THAT i GOT THE RESULTS FROM A cANCER hOSPITALdO YOU THINK HE
TOOATE TO SEND RECORDS TO dR. fONG aT sLOANE mEMERIAL.

w.

he

To All:

My son is dying. He was told by his oncologist today that he has three weeks more to live as his stomach has fluid and the cancer is growing and I better get hospice care. My husband I are the caretakers of our son and will keep him on his meds until the day he can’t stand the pain. He went from a strong healthy son who didn’t drink, smoke and did exercise. I have been driving myself crazy how he got this disease and how long ago.
He had lower and chest pain and thought it was an ulcer before he went to his primary doctor in October but it took 15 days to see a gastro doctor.

I made a big mistake by trusting the doctors in this town and never taking him to a cancer center. Its all too late. He did have a bad liver and pancreas, and his gastro doctors told him on November 9th that he was a point where he could not be operated on. He went thru 6 treatments of Gemzar and lost 60lbs in the hospital where he was most of the time due to his chemo treatments that never worked and made him so sick and weak. Why don’t the oncologist just stop the chemo! It doesm’t work for this cancer. I am losing my only child at only 45. I will blame myself forever for not going to a cancer center the day he was told he had bile duct cancer, and I will never know how he got it or when. I was told from the beginning to get a second opinion but his oncologist told me today that it wouldn’t have mattered. I found this site too late to do the research that has been provided here.

I have asked for donations be made to this site in his memory.

Rachel

PeggyP;

I am interested in which Cancer Center your husband was sent to: Pat’s oncologist told my son that he had 2 months at the most. His tumor has gotten bigger and no operation can be done. Was your husband’s liver comprimised and did he have pancreas lymph nodes. What type of treatment did he take? I have to work quickly to see if I can get help for him.
Any advice would be appreciated.

Thanks,
Rachel

I need help posting my son’s history on this website. I don’t know how to start on the introduction section so I was looking thru all the post on chemo. I have located a local doctor who could patch up some of my son’s liver but there is no guarentee that the cancer will stop. I was told by his oncologist that Gemzar and Cisplaitin may stop the progressing on the tumor. I was told by the gasto doctor that there is no way that a surgeon would even attempt to remove the tumor because his cancer is stage 4, has lots of cancer in his liver, pancreas problems. He is on drugs constandly for his pain and he just wants to die. My son did 3 sessions – 2 were with cisplatin but his kidneys had problems so the last session was only Gemzar. I don’t know where to turn. I have called his oncolgist and asked for a CT scan. She told me that my son would needf two more session before she would do a CT scan. I don’t believe that the chemo has helped him as he has been sick since he started the chemo. I intend to donate money to research of this disease to John Hopkins, and to this web site. I would like my post be provided to everyone, but just don’t how to do it.
Rachel

I am a new member. My name is Rachel and the mother of a single and only son named Patrick who is also 45. He also was diagnosis with Stage 4 bile duct cancer. His tumor is unoperable as his liver is metastatic. He had 3 treatments of Gemzar and Cisplatin and 3 treatment of just Gemzar. He is been in the hospital five times since his diagnosis on November 18th. He has decided to quit chemo and go to hospice. He has given up as he lost 50lbs in 3 months, can’t eat without vomiting. I am looking for one last chance for him to survive. Is there anything I can do?My heart is broken to see him suffer anymore so I told him he can go on hospice. Any advice would be greatly appreciated.