rhythmman
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Lainy, Thank you for responding! Yes, it is a technical question, but I’m assuming some others with cholangiocarcinoma have or will be entering clinical trials.
The drug class I mentioned has actually been mainstreamed for other types of cancer. For example, I believe Opdivo is out there for metastatic melanoma and small cell lung cancer.
Peace and goodwill, Peter
Good evening all. My girlfriend is about to start participation in a clinical trial utilizing a monoclonal antibody drug and radiofrequency ablation to jumpstart her immune system. One of the side effects, though infrequent, is the rise of an autoimmune disease, esp. if you have a history of said disease.
We want to contribute to furthering the science of cancer treatment, but without putting her health in further jeopardy. Does anyone have a history of using Ipilimumab or similar drugs and what was your experience with it? I’d appreciate any thoughts people on this discussion board may have. Thank you! Peter
Greetings! My girlfriend will be having a chemoembolization procedure at the end of this month. Is there anyone on here who would be willing to discuss their experience with her-as information and reassurance? Thanks much! Peter
P.S. She’s willing to provide her personal email address and phone number if that will help speed up making a connection.
middlesister 1, Thank you. My girlfriend is now scheduled for a chemoembolization procedure later this month as the prior radioembolizations had a partial response only. Any input would be useful…
Specifically, I was wondering if a transarterial embolization alone (TAE) would be easier for her to take without the added chemo drugs ((TACE). The idea here is to keep side effects and the invasive aspect of any procedure to a minimum.
I welcome any thoughts on the matter. Peter
Lainy, Thanks for responding. My girlfriend is 62 y.o. and not really in the demographic which normally gets this kind of cancer (except for her age). To date, the possibility of surgery (resection) or a transplant is not even being discussed as the intrahepatic biliary cancer has metastized. They won’t even consider using ablation or cyberknife on her lung nodules because the cancer is so widespread in the liver…
After my girlfriend decided to stop the chemotherapy due to toxicity she was approved for radioembolization (targeted therapy) and had two procedures. We’re still trying to ascertain how much of the tumor(s) in the liver it destroyed. If anyone has suggestions on how to find clinical trials specifically for cholangiocarcinoma, we’d appreciate the feedback. Thanks! Peter
