robynhar
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August 15, 2007 at 4:23 pm in reply to: Big vacation, confusion, clean up the blood…..acchhh !!!! #16400robynharMember
Hey Jeff….sorry for any confusion, Rick is healthy other than slight confusion lately. No, he is not coughing up blood !! acchhhh!!! The trio is no problem, we have been on many and have been on this particular boat 3 other times. Only not with cancer. My fear is , of course, to have something bad hoppen when we are far away from home, so I am trying to get as prepared as possible. Since it may be the last big trip we can take together, it is important for it to be just the greatest. I will research what he can take in case the amonia levels increase. Thanks, sorry for any confusion.
robynharMemberI am in the same place, Charlene. Its so painful and we cant get away from it. My husband is doing well so far, but has a huge 14 cm tumor with 2 small buddies on the left lobe. With a tumor that large, it ended cancidacy for alot of hopeful therapies. He is slowly loosing power, weight and hope. Its helpless. I have never felt such pain, but again digging deep and showing what your made of is what it takes. Enjoy each day, everyone here knows alot about what we are feeling.
July 21, 2007 at 3:13 pm in reply to: no ressection for us…what now, nothing ??? no hope but healthy #16154robynharMemberI read up on the Zeolite and did not find anything concrete on actual benefits. Most of that is just money making but it is impossible to know since no blind studies exist. My thot was we have a 12 cm tumor that chemo did not influence a bit, so I had my doubts that herbal remedies would knock it cold. But I have a tendancy to be a bit of a realist, and there is that saying “it cant hurt”. Be advised herbal remedies can be harmful mixed with scripts and let your doc know.
July 20, 2007 at 3:33 pm in reply to: no ressection for us…what now, nothing ??? no hope but healthy #16155robynharMemberThank you David, yes that all sounds familiar. His tumor was not affected by that chemo combination, and now it has other lesions forming. The left side of the liver has all but gone south as the tumor has atrophied it, but the right side is still good and functioning for him.
Here is some info I have unearthed about these tumors….It is important for the docs to find the origination of the cancer because the cell structure is different. Lets say between HCC and CC. So the CC tumors are different in that they dont rely on blood flow as others. So the Chemoembolization (HACE or TACE procedures) dont work or dont work as well (altho they are done, they are great money makers) So its hard to starve them when they dont care about blood flow as much as the other type tumors. In my husbands situation, and I suppose in most others, there is scar tissue with the tumor, also infiltrated with cancer cells. So ressection is tough. THis is such a nasty type cancer. My hub also feels good, and altho Bob (the tumor) is large at 14 plus cm and with friends, it seems to be in a good place. I am still researching but they have said basically go home and get some living done. They say you dont get better than U of Washington but I can still try. Thank God for good insurance. -
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