roma35
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laker,
Wow, nice story. I would take everyday as a gift, and I am sure you and your family is. This is an upredictable cancer that seems to sometimes scare Doctors, and baffle. I do think sometimes as with many cancers, the growth can be slow in an older person. I for one, in you mothers situation, am glad a treatment option wasnt offered, or your family didn’t want to treat the cancer. Keep up the good news.
Peace
BarbaraI just have to say I was a caretaker for my father who was diagonosed with this brutal cancer in stage 4. Being there for him, and listening, supporting, encouraging, hugging, driving, sitting through chemo, endless pet, cat, ultrasounds, and so much more, was the abosolute LEAST I could have done for him. I would have done anything to take away this cancer, or at the very least, ease his suffering. Please let friends and family help. It is just as important to us as it is to you. It is not a burdon, but an absolute labor of love. You patients, everyone of you, are my heros, I put you all in my heart where I keep my dad.
my dad had the procedure done only once and 7.5 litres was extracted. He immediately felt relief from preasure the fluid was causing. He was able to sit up easier and even walk a bit around the house. He never really regained an appetite but that may because at the time of his procedure, the cancer was very prgressed. I will say this, his acites never returned, infact his belly seemed to even get smaller. Good luck to your dad for the procedure. It will be worth it.
Thanks Guys. It was my pleasure to represent everyone on this board at the symposium. It is just not good enough for these Doctors to say it is a very rare cancer and it is difficult to detect early and therefore……I think CC evokes fear in Doctors, and how in the world is that supposed to give patients and caregivers any hope? I think we are on a mission!
Marion. cant wait to meet you as well. Cant promise nice weather ever in Chicago however. Last night I had three layers of clothes on and a blanket watching my sons Baseball game. Today 75 supposedly, so a better day for all that live in the Chicagoland! Winter gets very old around here.
Hugs back at you
BarbaraThanks Lisa. Roses sisters posts are hauntingly familiar. I am so sorry for Rose, she is so young and full of so much hope.
Thoughts and Prayers with Rose and her family.
xoxo
BarbaraA very wise person on this site told me that one cant have a great love and relationship with someone and not experience a great pain when they are gone. I guess I wouldnt have sacrificed any part of my amazing relationship with my dad, and therefore I have been left with a big void in my heart. I cant imagine Fathers Day, because Mothers day was incredibly sad for my family. My father, like Marions Husband, was always the person at the head of the table addressing the occasion, and yesterday my whole family gathered, but we kind of stumbled through the day. We made it through the day thankfully because of lots of kids to keep us busy, but the emptiness without my dad surrounded us. I know lots of people say my dad is here and he is with us, and I know I will feel that way eventually, but now I just miss him, and that thought doesnt ease the pain. I am hopeful that in time, perhaps when I am on “seconds” of occassions, it will be easier, but for now, I will get through the “firsts” because that is what my dad would want.
Peace
BarbaraI got up today, and for the first time in months and months my first thought wasn’t a sad thought. I got lots of work done, I had lunch with a friend, I went running, I watched my son play ball and get a double and strike out the side for two innings, my mom has plans with two friends for dinner(thats the best part of the day) and then I read your post, and now my day is even brighter. Where there is life there is hope, and today I feel lots of hope. Wonderful news! Appreciate every moment with your dear dad, you just got an amazing gift.
Tom and you keep on “taking it to the Limit” and Jeff will be the angel that is smiling the brightest.
I was thinking so much about Jeff in the last two days, and while I am greatly saddened by this wonderful persons passing, I am at peace that his suffering is over. Jeff is the first person that responded to my first post on this site, and from that very first post, I felt like I had a friend in him. His memory will live on forever on this site because his knowledge and compassion from his thousands of posts are invaluable.
Rest in Peace Jeff, you too, are dancing with the angels now.
Valerie you are in my prayers along with your family.
xo
BarbaraI agree with Tess, I think depression is a major issue with Cancer patients. When my dad was first diagnosed one of the symptoms was depression. I dont know if it is caused by something chemical in the body from the cancer, or if it is just “depressing” to have cancer, but my dads mood definitely reflected the cancer. He didn’t want to take anything for the depression b/c he thought he was taking too many pills, but we did give him St Johns Wart and that may have helped a bit. The doctor had prescribed Adavan(?) and said it was a really mild, but he never took it. He also tried Marinol (marijuana), to increase appetite, but that didnt help his appetite, it did however really relax him.
I know how overwhelming and frustrating this can all be, I am thinking of you.
BarbaraNatasha,
I am crying reading your post. I cant even imagine going through what you have and are going through. Losing one parent to CC is allready devestating. You are an incredibly strong women, to be doing “ok”. Your parents both must be looking down on you very proudly for dealing with what you had to endure in the last 50 days. I, too, will be thinking of you.
Peace
BarbaraHi, that does sound a bit strange. I know with my dad, when he was eathing and drinking and had ascites, he would get bloated quicker and that would last most the day. I believe he just wasnt digesting food very efficiently, and that was causing his abdomen to appear larger.
Pain meds would really help with the procedure….Chris, Love It!! A seven year survivor! I am certain many on this board are thrilled to hear your news. I, too, and very interested in details….Did you do any chemo after whipple? Any Lymph node envolvement? What kind of follow-up do you do now?
kctasty, I agree with Kris, your mom must concentrate on getting her strength back, before any talk of treatment. It is always good news when the tumor can be removed. My dad had the J tube after his Whipple for a short time and eventually got back to his pre-surgury weight, and was able to eat almost everything he ate before the whipple.
Definitely keep us posted
BarbaraAh Shucks!! you make me blush! No, really, I am not doing anything differently than any of you. Everyone on ths board is so kind, sympathetic, helpful, I feel such a bond with everyone of you. I don’t want my fathers death or anyone elses suffering at the hand of CC. to be in vain. I will try to do anything I can to help raise awareness, and fight for a cure. I have such praise for the famly who started this foundation. After going to the conference this past weekend, I realize more than ever, how few people understand the severity of this cancer.
Again, thanks for the kind words, and brightening an otherwise very sad day for me.
BTW, special thanks for Tiapatty for coming to my dads wake. She made an effort to speak with my family and friends, and her kindness wasnt lost on me in the least. It is so nice to have a fellow CC caretaker living right around the corner!
Peace everyone!
Barbara
