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  • in reply to: Afinitor (everolimus) #76675
    rschure
    Member

    Hi Sandy,
    My father n law used it for his recurrent metastatic CCA. Not many side effects. His tumour markers came down. The liver mass stabilized but he developed mets to the lungs. I think it has potential. Would attempt to use highest dose. 10 mg I think.
    Rebecca

    in reply to: Treatment Centers/Physicians #29999
    rschure
    Member

    Our surgeon was Dr Myron Schwartz at Mount Sinai Medical Center, NY
    He is amazing. He did an outstanding surgery on my father n law.

    Oncologist 1st round with Andrew Jennis at Hackensck in North Jerset

    Met today with some guru Dr Steven Schreibman at Morristown Medical Center. He’s been in the field a long time and we are very exited to work with him. He is going to doIN-VITRO DIAGNOSTIC TO GUIDE CHEMOTHERAPY SELECTION For solid tumors. This is or treatment of my Farther n laws recurrence

    rschure
    Member

    Hi Gavin and everyone else. I ve read this post and it helped me do tons of research.
    We actually sent my father n law to Croatia while he was still feeling great even though his tumours grew significantly we felt like it was important to see his family.
    He is getting 2 opinions on the next step in a week or so and unfortunately I cant see doctors with out him.
    I will definitely get back on and report. Dr Schwartz his surgeon would like to see the tumours stable for some period of time before resecting and does not feel it is ammenable to a stereotactic RT at this time.

    I hope every one is doing ok. Thank you so much for your support

    rschure
    Member

    Hi Gavin, Being new to this board. I am wondering is there a usual 1st line of chemo doctors use with metastatic cholangiocarcinoma with mets to the liver? Is it best to jum right into a clinical trial? my father na law already had Gem/Cis and Radiation after resection a year and half ago

    in reply to: Help Locating on Oncologist and Story New Member #73524
    rschure
    Member

    Thank You and I am so sorry for your loss its wonderful you give back by supporting people on this site

Viewing 5 posts - 1 through 5 (of 5 total)