safinnell

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  • December 4, 2015 at 4:08 pm in reply to: Introduction and my story #89550
    safinnell
    Member

    thanks Lainy.

    Truman Medical is at 25th and Holmes just next to the Children Hospital. They are trying to boost there cancer center.

    December 3, 2015 at 6:34 pm in reply to: Introduction and my story #89548
    safinnell
    Member

    just an update to my story.

    I had kidney failure after my 3rd round of gem/cis chemotherapy in October. I was on dialysis for 3 weeks but my kidneys are almost recovered. We did a 4th round of GEM only. I have a surgeon in kansas city (Truman Medical Center) who wants to use the nano knife with a resection in DEC or JAN if my tumor has not gone into the lungs. The first hurdle will be a CT or MRI with contrast as that may have a bad effect on my Kidneys. The second will be if the tumor has gone to my lungs. 2 big hurdles in my way but the positives are the Chemo seems to be working as my tumor markers have fallen way down to under 2000 from 20000. I am in very good place right now(mentally /physically) so looking forward to 2016.

    Thanks,

    Scott

    September 13, 2015 at 2:47 pm in reply to: List of famous people with Cholangiocarcinoma #89647
    safinnell
    Member

    Thanks for posting this Marion. I agree with Lainy but it was very interesting to see how this touches everyone even celebrities.

    August 27, 2015 at 3:39 pm in reply to: Introduction and my story #89544
    safinnell
    Member

    Thanks for the warm welcome and support. I have been reading the discussion board topics and it has given me great hope to know that there are lots of survivors. I struggle most with my emotional roller coaster right now but am working on getting that taken care of as part of my treatment. I have difficulties because my first wife lost her battle to Non Hodgkin’s lymphoma over 17 years ago and now I face the same battle. She had a great oncologist but was unfortunate to have the pharmacist at research medical center in KC that was diluting the cancer drugs. I know Hope, attitude and a large amount of faith will get me through this along with everyone at this wonderful sight.

    Thanks again,

    Scott

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