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thank you marion, catherine, and Gavin. we are so appreciative of all your thoughts, prayers and support. we are looking for second and third opinions now and hopefully will find some positive news.
thank you carla.
thank you lainey. we need all the prayers we can get. we really need a miracle now.
thank you marion. i will do a search and see what i can find out.
Thank You Lainy
my sister has been living with this terrible disease for 6 years now. she is still fighting it. it keeps spreading and she keeps fighting. it has now most recently appeared in her colon. this fight is tiring. she will be starting chemo and radiation again soon. hopefully it will work. i don’t get to post much anymore as besides my sisters cc my mother in law has alzheimers which keeps us busy as well. i hope they can find a more effective treatment for my sister soon.
thank you to everyone for your positive thoughts and prayers. today will be a difficult day. our sister who lives in sweden came to visit for the holidays and is going home tomorrow and as i said chemo starts monday. it was such a good few weeks being together. we said a toast on new years eve that we will all be together again for next new year. i now pray that our dream will come true. thank you again and my positive thoughts, wishes and prayers are sent to all of you here as well as those who are dealing with this awful cancer who haven’t found our group of wonderful people on this site yet.
i dont know if your father is taking xeloda but my sister is and she too is having a bad case of hand foot syndrome. however where your father is sleeping most of the time my sister has terrible insomnia. definitely check with your dr. as i said in another post a couple weeks ago my sister looked good and was laughing and traveling. since being on xeloda she has taken a 180 degree turn. chemo does a lot of things to people and each person reacts different so talk to the dr as soon as you can and get an accurate evaluation.
hi thank you for your advice. my sister does want to stop chemo. the side effects with the xeloda this time have been horrible. the cracking of her hands and feet is very worrisome. she can hardly bend her fingers or touch anything. the insomnia is also awful. now she is saying she is having pains in the area of her liver and kidneys. its a shame because a couple weeks ago when she wasnt on any chemo she was doing much better. i dont know if anyone has suggestions on what to do for her hands and feet but i will let her know any advice that is given to us. thank you so much.
my sister’s cc has spread to her pelvis, ovary, and lungs. she has had surgeries to remove tumors from pelvis and ovary. she had one surgery on her lung to confirm cc. as more spots have shown up they told us they can no longer do surgery. she now will just get chemo and hope it works. i say this to let you know that doctors can and do operate on other areas if they think it will be helpful to the patients quality of life. in my sisters case, it has been 5 years since she was diagnosed and she has had 4 surgeries and we would say that because of them she has earned some quality time allowing us to do a number of things together. we are very worried about the chemo that she will now be getting but just have to wait and see how it goes.
hi mizzey, I do agree that you should let your sister choose the best path for her treatment. you can tell her what you think but ultimately it is up to her. my sister has been dealing with this disease for 5 years now. she has been thru 3 surgeries, different chemos and radiation. we thought things were going good but we just got her latest test results and the cancer continues to spread. it is a frightening thing to go from good reports to difficult ones almost overnight. we are looking into clinical trials now as my sister wants to continue the fight. we support her decisions as we move thru and offer advice but not to the point of pressuring her. we continue to pray for a cure and hope for better treatments. that is the reason she continues to fight. she holds out hope that the researchers will find a cure. my advice would be to enjoy everyday. when my sister hasn’t been doing treatments we have gone places together and just spent time together. we recently went to visit our other sister in Sweden and had a wonderful time. hang in there and just be there to listen to your sister and enjoy each others company. that will be a big help to her. she is blessed to have you in her corner.
hi michelle, i would recommend talking to your surgeon. my sister had her first resection and then gem/cis. the cancer came back and she had a second surgery. she then had a second round of chemo. the cancer then spread to her pelvic region and she had a third surgery. she recently went thru a round of radiation for a pelvic tumor. she may not be eligible for any more surgeries but you should know that multiple surgeries are possible. you have to keep fighting this cancer. it doesnt give up. if the drs cant do another surgery maybe targeted radiation could be an option to shrink the tumors. your sister sounds a lot like mine. my sister never complains. when she is on breaks from treatment no one would know she even has this disease. dont give up. we have been fighting this for over 4 years now. stay positive. always be willing to look for 2nd 3rd or 4th opinions. we have gone to a number of drs looking for the best options. i
Thank you all for your great wishes. we appreciate all the positive thoughts being sent our way. i am sorry i dont post as often as i used to but we seem to always be running one way or the other. its either to the doctors for tests and treatment or when that is over we try to spend as much free time as possible enjoying the break from treatment. in the meantime my husband and i are busy with my mother in law who has alzheimers and cant be left alone. its been very hectic the past year with her. very sad to see someone’s memory just slip away. but as i said we take our victories where we get them and right now its with my sisters doctors report so we are just going to enjoy it. you are all always in my thoughts and prayers. this website is such a comfort to us and the well wishes really boost our spirits. i will definitely let everyone know what happens after the next scan. THANK YOU AGAIN!!!!!!
thank you again valwong. your insight is very helpful and i am going to pass the information to my sister so she can talk to her drs
thank you valwong. your fathers case seems similar to my sister. i have concerns about the chemo treatment they want her to take. it is very strong and they dont know if it will help. how long did you try chemo before switching to radiation? was the radiation effective at keeping the tumors from growing?
thank you again for the advice. we are looking for a third opinion now. she really doesnt want to go thru chemo again.