samssons81

Forum Replies Created

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • in reply to: Proton Beam Therapy #84551
    samssons81
    Member

    You might want to call MGH in Boston and speak to Dr.Hong and yes they do place a olodurm shield to protect any vital organs from collateral damage.

    Good Luck in your decision.

    in reply to: Proton Beam Therapy #84550
    samssons81
    Member

    msargent1,
    In response to proton beam radiation. My wife went through that as a clinical trial at MGH in Boston a year ago due to the tumor on her liver that was unresectable. They were able to actually kill the tumor to the point that it was dead tissue. After her six month visit and follow up scan it was found to metastasis to the lung area and just recently to the brain. Currently undergoing radiation to the brain and we will address the lung area at a later date. Asked if the proton radiation caused the metastasis and we were told that it was unlikely due to both the chemo prior and the proton radiation. Also prior to proton radiation we considered Sloan’s treatment which was a direct chemo to the tumor fed through an intravenous and pump which was a indefinite treatment but decided proton was best for her.

    So the fight goes on in hopes that another clinical trial comes along soon.

    in reply to: My Introduction #83846
    samssons81
    Member

    You guys and girls are awesome. Thanks for the words of encouragement.

    Sam

    in reply to: My Introduction #83841
    samssons81
    Member

    Kris

    Yes we did get second and third opinion and went on with the help of our son’s to look at four different options because the tumor was unreceptive we had the option of radiation, proton radiation, targeted chemo to the tumor and we also considered a holistic approach. We were sold on the proton radiation at MGH for several reasons one being that the treatment was virtually unknown where we were getting chemo treatment and what we found was it was less evasive (not killing god cells) . We are attempting to find another clinical trial that will put this at bay for a longer period of time. Thanks for the suggestions on protein shakes.

    Sam

Viewing 4 posts - 1 through 4 (of 4 total)