sandtdad
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Pcl1029
Thanks for the clarification
I was just thinking that the medians would still fall in stable disease group
Just more proof how important response rates are to any treatment with this cancerPcl and Eli
Thanks for the information on the studies. There is not much info out there on
these trials
And even the posted results look a little hard to get a handle on
The panitumimab trial seems to have such a low reaction rate
With only 33% getting a reaction and only 8 people having over > a grade 2 rash?
Based on those rates no one having a response is in the median Pfs or os
Hopefully over time more data will become available detailing groups that had responses
ThanksPcl1029
I didn’t get a copy of my bio markers report but have a treatment coming up this week and will get a copy. As for an RNA analysis I will have to say you are way ahead of me with most of this stuff ….what is an RNA analysis?
I have noticed that you have been fighting this cancer for awhile with some success…has it been a constant cycle of therapy and recovery or have there been periods of (new) normalcySusie
Thanks so much for welcoming me…although I have been on this site so many times it feels funny to be welcomed.
I will try and keep people up to date on my treatment…although now that I am posting it does feel a little strange….I can see where people would not want to post if things are not going well (depressing)… And if things are going ok….you don’t want to feel/ sound over confident …given the quickness with which this disease can turn on you….Plc1029
Thank you for he advice. We are already talking next steps for when this treatment starts to fade. We actually had to do it earlier due to some skin rashes that we finally got under control
As part of the trial have scans every eight weeks
I am not really close to Rfa or surgery territory yet…but hope with a little more improvement to start down the y spheres road
That seems to be another area where the good results buzz is picking upTo anyone else that has questions about panitumimab trial please feel free to ask
Like many on this site I did not have many symptoms
I started to get some pain after fatty meals and had a bad couple of days after a weekend away..but the pain was not too bad…I was thinking gall bladder
My diet was good and loved seafood
Again like many on this site I am in pretty good health …46 year old
Run 4 times a week plus 2 days at the gym…coach my sons hockey and basketball teams
MGH did do the full bio markers and this was the only match for existing medication….but they did say that there is another marker that is getting a lot of research attention (because it has applications across many cancers) that I am a match for that ad could be seeing new trials within a year…so I need to keep an eye out
The current treatment has seen response in both the large and small tumors
Shrinkage as well as not seeing some of the smaller ones
So we live scan to scan and hope that this treatment leads to another more targeted treatment down the roadPcl1029
That study was one of the reasons I decided to give the trial a shot
Those response rated/complete response rates/resection rates seemed higher
Than anything i had seen
I know it was a small single site study
But hope springs eternalI believe I am stage 4 intraheptic. I have one large tumor in one lobe of the liver and had many small ones on the other side.
I have been on the trial since mid july at mass general hospital
I have tried to research many of the panitumimab and centuximab results but data seems scarce
And discussion boards where people discuss recent experience is limited as wellI am just hoping maybe some of the unknown around the drugs means there is opportunity for better outcomes
