sarah-frater

Hi Gavin,

Thank you for all your information on here!!

I have recently had a biopsy done, and the tumour cells are now being tested for DNA mutation, excited to see what they come back with. I have read a few cases where it appears that some people diagnosed with CCA actually have a mutation in the BRAF gene. Fascinating how it can be something completely different. Here’s hoping I get some good results and can start on more targeted treatment. I was diagnosed with CCA in February this year, I have just turned 39, and they told me that I wouldn’t see this Christmas, however I combine a lot of natural therapies together with chemo. I have mets to bones and lungs and liver is covered in a lot of very small tumours. I am determined to beat this, and will try everything possible!!