schrums4
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schrums4Member
Thanks for all the advice. Jeff isn’t constipated though, we have done miralax and colais in the past when he was and both worked. This is just different for him. He isn’t really eating very much either. In the past month he’s lost about 10 pds., because he needs to be on a low fat diet it’s really hard to put any weight on! And the ambian didn’t work for very long, he’s awake and miserable! Ugh!!
schrums4MemberThank you Gavin, I will check it out!
schrums4MemberUgh! He took it about a half hour ago! Already sleeping, hopefully peacefully. Thanks though. Cathy, how long have you had this feeling? His seems to be continuous, but harder to deal with in the evening and night. Thanks again.
schrums4MemberHi Andie, My husband has been getting the full feeling just lately too. Have your doctors given your Dad any suggestions on what causes this or what can be done to be more comfortable? He is not eating very much either. He’s actually lost a quite a bit of weight, but has to be on a low fat diet too. So hard to figure out what to do for him. Hang in there! Jenny
schrums4MemberThanks to all for the warm welcome. This really is such a helpful site. And so great for encouragement! Sincerely, Jenny
schrums4MemberDear Johanna, I was a little confused, we went to University of Pittsburgh Medical Center, so I was going crazy looking for your doctor, which obviously wasn’t there! I am hoping the chemo goes well and does the job on the tumor!! Take care!! Jenny
schrums4MemberKate,
Hi, I’ve actually been checking out the website for a while now but I must not have registered right or something the first time I was on so I re-registered a couple months ago. I will go back and introduce myself again. Sincerely, Jennyschrums4MemberJohanna,
I agree with Lainy!! So glad you have a plan set now!! Did you go to UPMC and if so which surgeon did you see? Good luck on Monday, will definitely be thinking of you!! Jennyschrums4MemberJohanna,
I would just also suggest that you get a good notebook and document everything! I am on my second one now, a friend of ours suggested it to me and it has been very helpful. Again, thinking and praying all goes well for you! Take care!! JennyOctober 31, 2010 at 3:27 pm in reply to: Is there a best place to be treated for cholangiocarcinoma? #43526schrums4MemberHi Johanna, My husband was diagnosed in February of 2009. We went to the Liver Cancer Center in UPMC in Pittsburgh, Pa. Our surgeon there was Dr. Clark Gamblin but has just recently moved to Wisconsin to head the Liver Cancer Center there. I’m not sure which hospital but I’m sure he would be easy to find. We still go to UPMC but we now see Dr. Geller and I can tell you that I know with all my heart that Jeff would not be here with us today if it weren’t for the doctors there. Just to let you know we did go to Cleveland Clinic first but they gave us no hope for surgery or even any type of treatment. Just not the place to go for CC. I wish you the very best and will keep you in my prayers! Jenny
schrums4MemberDear Kim,
I have never posted here but after reading your post I had to! My heart aches for you and your family! My husband was diagnosed in Feb. 09 at the age of 45. He did have surgery in May of 09 and is doing well right now. I understand completely why you would post on here, it is just so nice to connect with others that understand. Just wanted to let you know you and your family will be in my thoughts and prayers! Jenny -
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