sdaigre

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Viewing 7 posts - 1 through 7 (of 7 total)
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  • in reply to: End of life #90440
    sdaigre
    Member

    Thank you Lainey and
    Marion for your kind words. Our transplant team has said that it would be about 3 weeks and a gentler way to go. Hoping for kidney failure actually. I will let you know as it may help someone else. Also wanted to tell you that Dr. Javle at MDA is our oncologist and I am so glad that his research is supported by the foundation. He is wonderful and because of him we have had 5 more years and the blessings of two grandchildren.

    in reply to: Super, super sensitive – Journey’s End -what to expect #90435
    sdaigre
    Member

    This is strange but we are stopping anti rejection meds . Chola bio is back and are at peace with very immeninent death. Choosing to not ride out the spread of the cancer. Anyone have any thoughts. Not to continue the fight, please, but timing or experience. Our doctors are supportive and have answered questions but wondering if others have chosen the same path and some thoughts?

    in reply to: Gastroparesis and Xeloda #89760
    sdaigre
    Member

    My husbands tumor has returned, even with liver transplant. Found this because of feeling full, then diagnosed with gastroparesis. He’ s now having chemo again and has a JPEG so his stomach can drIain and fed through the J tube. Please google gastroparesis as there is loads of info and suggestions on what foods he can tolerate easier than others. I would ask your Dr’s if the Xelods can be crushed. he also took Xelods after transplant and got the horrible hand and foot peeling.. .did find help with diatomaceous earth as a paste. Only thing that relieved the discomfort. Hope this is helpful
    I do agree that you should insist they track down infection! I don’t want to scare you as most people deal with gastroparesis without ever needing a tube.
    Susan

    in reply to: Xeloda alone is helping! #73595
    sdaigre
    Member

    Hi, I haven’t checked in awhile but would like to tell you that my husband is 15 months out from liver transplant and doing great! Cancer free and healthy.
    Cisplatin very difficult with no immune systeem and while the xeloda was rough thankfully we found Mississippi Miracle mud which relieved pain immediately unlike anything else we tried. We are forever grateful to Dr. Javle at MD Anderson and Dr. Ghobrial and Dr. Gordon-Burroughs at Methodist in Houston. Hang in there!

    in reply to: Mom’s cancer growing again, starting new regimen #54153
    sdaigre
    Member

    Hello, it’s been awhile since I have been checking in but my husband has been doing do well that it was as if I could take a break! He was diagnosed a year ago, did the gem/cap chemotherapy here at home, then to Houston for radiation. He was recommended for liver transplant as his tumor is non resectable. So we now have two hospitals, MDA and Methodist. We have been back home for the past month and he haslots of energy, looks wonderful and we feel almost normal! He is on his third round of Xeloda, 2 wks on,one week off while we wait for a liver. Starting to see some evidence of hand- foot side effects. I have found some info on B6 being helpful. Does anyone have any experience with this?
    I really feel that we have beat the odds here so far and hope this is encouraging to others. When he was first told the news, he was given 3 to 9 months with no hope to ever qualify for transplant. Now look how things have changed! We read the Anti Cancer Book by Servan Schreiber and that was so helpful as it gave us focus. Another thing that I think made a huge difference in his tolerance of the chemotherapy and radiation and his energy level was a whey protein isolate, Immunocal. If anyone is interested, google it, there is a lot of info available. Thank you all for sharing and allowing me a place to go with this.

    sdaigre
    Member

    He totally changed the way we felt about cc entering our lives. Truly a wonderful and giving man to make such a huge difference to so many.

    in reply to: Hello all…I’ve been following but now am joining! #52596
    sdaigre
    Member

    Thank you for your welcome. Pam, I am so sorry about your dad. Was he seeing Dr. McKee in OS? He is who diagnosed my husband.

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