sdlinriverside

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  • in reply to: new to all this #82402

    Thank you all for the well wishes. Unfortunately my mom passed away on July 6 at 1:44 in the morning. Not from the cancer but complications from pneumonia . My brother and I were with her when she passed. The pass year and a half has not been easy, but I am glad I was able to take care of her. She was not only my mom but my best friend. Please keep up the fight.

    Greatest respects and Love
    Joanna

    in reply to: new to all this #82394

    Well my mom is back in the hospital again. This time she woke me up about 3 in the morning getting sick to her stomach. She was breathing very fast so I knew she had aspirated some of what came up. When she arrived at the hospital she had a fever of 104 and an unknown ceptic infection. They think that it is coming from the new stent that was placed when she had her biopsy. She already has had one infection there right when it was placed. I finally got to meet with an oncologist during all of this and lets just say that I was not impressed, by the time the meeting was over I wanted to tell her what I thought, but I behaved my self…. She basically told me that nothing can be done and your mom is sedated and on a ventilator so just pull the tube and let her go. REALLY… When I met later with the ICU dr he stated that she was doing really good and they were trying to remove her from the vent. I am a realist and I know what is going to eventually happen do to her many health problems but she (her body) will tell us when its time and I am not going to let some A** hole oncologist tell me any different. I will fight for her till the end. Unfortunatlly that may be soon because during all this I suspect that she may have had another stroke. They are going to do a new ct shortly and let me know. If this is the case I will let her go because I don’t want her living the rest of her life in some strange home on a ventilator.

    in reply to: new to all this #82392

    Thanks to all. I will be looking at city of hope. We met with primary dr today and we are going to see if stents for the heart are possible. It seenms since the diagnosis that no one wants to touch her. They are pretty much writing her off and I am not going to let them. I am going to keep pushing back until I cant push any more or there is nothing to push for.

    in reply to: new to all this #82385

    Hi Marion Yes the biopsy came back “malignant cells present Adenocarcinoma”. I am trying to get all the info I can before her next appt. so I can be very well informed. Thanks to all for the well wishes

    in reply to: new to all this #82381

    yes I know. Taking care of her for over a year now has lead me to one conclusion, not all, but most doctors are idiots ! If it was not for me researching and making suggestions for her care I am positive she would not be with us right now. She is 71 soon to be 72. The good thing is that in that 9 months there has been no change and no spread to surrounding lymph nodes or tissue, she only has the one spot or stricture. After reading the news on aspirin I may have the drs put her back on it. they took her off of it for another actual blood thinner (she is on Plavix and xeralto). Maybe this is why there has been no change. I am also going to start giving her serrapeptase (natural product) for her blocked arteries but it has shown some good in cancer treatment it is also a good anti inflammatory.
    We will certainly be discussing, demanding :-) to see an ONC.

    Thanks again Joanna

    in reply to: new to all this #82379

    Thanks Lainey. She is not seeing an ONC yet. I just got the results a few days ago. We have an appt with her primary dr to discuss all of this and where to go next. Yes I know 9 months is a very long time. We are in Riverside, CA and I am going to get atleast a second opinion for her. She has had a very ruff time, that is why it has taken 9 months. She had what the drs call a moderate stroke in march 2013 and was recovering. After a while she had another minor stroke and then was hit with the jaundice, that is when they put in an external drain. From that point she was hospitalized several times for sever dehydration and another minor stroke. I finally got a dr to listen to me that the drain was causing the dehydration so he brought another GI dr on board and they placed a temp stent. From then on she was doing well and I was able to get her to uc Irvine for the biopsy. When they did the biopsy she wound up back in the hospital with an infection due to the procedure. It has been just one thing after another with her health. Since the diagnosis we are trying to make a decision on whether or not to put her through triple bypass surgery. As always any help is greatly appreciated

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