Forum Replies Created
November 5, 2017 at 11:33 pm in reply to: Tumor pain #96045
Hi Cait, Scott and Marion,
I couldn’t find my way to the link, but my wife is having similar pain/aches in the few days following gemcis infusion.
Any thoughts on what it is? or how to treat it? My wife tells me its more like a pinching feeling in the general area of the liver… where the primary tumor is.
JHNovember 2, 2017 at 8:55 pm in reply to: Husband of 35-years-old ICC patient #96021
My wife is going through with her second cycle of GemCis + Meditreme.
In the meantime, our onc sent her biopsy sample to FoundationOne for genetic test. The result came back inconclusive, as they require at least 20% of the biopsy sample to be tumor cells. Apparently, our sample came short of this requirement. I don’t know how this happens… anyone with insights into biopsy or FoundationOne requirements?
Fortunately, we have just taken another biopsy last week, and our onc wants to resend this new sample over. She is a bit worried that the new sample, having been taken after the first round of chemo, might have lesser portion of tumor cells.
Quite frustrating week.October 16, 2017 at 9:32 pm in reply to: Husband of 35-years-old ICC patient #95875
Thank you Gavin and Mary for the words of encouragement.
We are receiving treatment from one of the largest cancer centers in Korea, but I plan to seek out additional opinions from US centers as well.
The clinical trial she will receive next week, MEDITREME consisting of two different immune checkpoint inhibitor drugs, is a strong incentive for us to stay with this team and see the progress. I wonder if anyone here has any insights into this trial.
In the course of diagnosis, two needle biopsies were done over the course of 2 weeks. Once on mid-Sept. and then another in end-Sept. The second one was done due to inadequate amount of sample taken during the first.
Now the doctor wants to do another one, prior to starting the clinical trial. My wife is terrified of yet another poking around, as it has been generally less then pleasant experience. I’m more concerned about the risk of metasis. Can anyone advise?