Shellsbells
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Hello again, on Feb 14, 2019 my 29 year old son’s body succumbed to this terrible disease. In the last few months of his life, the cancer metastasized quickly allover his body, like wildfire. from the lungs to the skin, back to liver, stomach lining, colon, spine and finally his brain, resulting in a very fast and unexpected early ending.
He was taking Keytruda as a last chance option and was given 6 months just a week before his 2nd dose of Keytruda on Feb 1.
He fought valiantly for 14 months, suffering tremendously through it all. I’m so relieved he is no longer in pain, in the arms of his heavenly father. I find peace in knowing he has a new body, perfect and whole again. Cancer is dead, and my son’s spirit lives on for eternity! We have the victory!
I’m thankful for your support throughout the journey. May God be with each and every one of you!
My son went to the ER Wednesday for trouble breathing and coughing up blood(he’s been doing so since biopsy). They did another cat scan and his tumor is now the size of a lime. It’s enveloping his bronchials which is causing the difficulty breathing. It’s also pressing up against his heart a little, but not causing any trouble there. There’s also an area in the lower lung that may be abscessed, with a super bug. He’s on an antibiotic for that now. Both areas show necrosis which is prob causing the bleeding. I know he’s suffering, but they’re moving so slowly this time. The tumor seems to be growing quickly from a grape tomato size to a lime in about 4 weeks. Funny how they use fruit to compare size.
The genome results haven’t returned yet. He’s meeting with his radiologist Thursday to discuss possible treatment and also getting a 2nd opinion with an oncologist who’s an expert in cholangiocarcinoma at City of Hope Cancer Center.
Does this new recurrence change his stage from 3 b to 4?
My son had his biopsy last Monday… It’s back. But now as a 2″ mass in the left bronchial/lung. The original tissue and the new tissue have been sent away for genome testing and results should be back this week. Treatment plans are pending. As is another opinion from City of Hope.
Has anyone here had CC metastasize to the lungs?
My heart is breaking, and I can’t imagine him suffering through another round of treatment so soon. I’m numb and in disbelief.
Hello again. My son completed his chem-radiation treatment July 12. He started coughing a few weeks ago and had a follow-up visit with his oncologist for routine blood tests & PET scan. Doc put him on a z pack for 5 days, hoping it was bronchitis, and also ordered a CT scan. His tumor marker was normal, but the PET scan showed a spot on his lung. 🙁 His cough continues, and he’s scheduled for a biopsy soon.
I can’t breath sometimes… but I have to trust that this is all in God’s hands. My son is so brave and he believes it will all be ok. We were about to buy his family tickets to come and visit for thanksgiving. And now, we wait. Will keep you posted.
I’m so thankful to have your imput and encouragement. The few weeks my son had between the GemCap chemo and the chemo/radiation were blissful for him. He felt healthy and hopeful again and was able to spend quality time with his wife and kids, along with friends and family. He started the chemo/radiation this past week and says it’s been rougher than the GemCap alone. He’s exhausted and nauseous and not looking forward to the hand/foot syndrome to return. 1 week down, 5 to go and he’s not sure he will make it. 🙁
Will his body get used to the therapy? Will this be how the next 5 weeks go? I know everyone’s body is different and responds differently, but your experiences is all we have to go by. So I thank you in advance and ask for prayers and well wishes!!
Congrats Mary!! That’s amazing news and we are hoping for an amazing outcome for my son, as well 🙂 I’m praying for your continued health! A heavy, heavy weight has been lifted from my heart. Knowing that his wife, children, extended family and I will have him around for a while longer.
Again, you have been a blessing to me through this, as I hate to ask my son so many questions. I feel like a burden to him sometimes and I don’t want to worry him with my constant concern and questions. If I could, I would be at every appointment and on every detail, but he is grown and wants to be in charge of his care. I’m learning to be encouraging and supportive from the sidelines!!
Im a huge believer in prayer and in divine intervention. So, I will continue to pray for healing and comfort for all patients and caregivers, present & past, who are dealing with the effects of this horrible disease. <3
We have GREAT news! Son had his first PET scan after his Gemzar/Xeloda treatment. NO CANCER!! His results came back completely clear. Thank God! He has 2 weeks before he begins 5-6 weeks of radiation for preventative measures. He is feeling great and has gained a considerable amount of good weight, eating a high protein diet. I don’t really understand what they will be radiating? The surgery site to prevent reoccurrence, is what he told me. We’re on cloud nine over this news and are hopeful for the future!
Thank you all for your continued support!
Wow! Great recap of events. I’m glad you’re here to share. I really am thankful for your insight. So, you didn’t experience any burning or blistering from the zapping? Any problems eating or digesting? I know every body responds differently, but your experience is helpful.
Thank you all for being supportive and welcoming! This has been a rough year for us, but we are believing that there will be healing and that we will end the year in victory. AMEN! I’m so proud of my son and his faith and strength as he faces this battle. His Gemzar infusion is behind us, thank God! He’s not tolerated the Capecitabine very well with some symptoms of hand foot syndrome. 🙁 He’s getting a break for about 4 weeks before radiation begins. He’s scared of the cancer returning and is so stressed out. It breaks my heart. I cannot begin to imagine what it’s like to have to physically fight this disease, and mentally and emotionally fight it as well.
Can you give me a heads up as to what he has ahead of him with radiation? 5 days on, 2 days off for 6 weeks. Symptoms, recovery? What can we expect and what can we do to help? Im thankful to be here and y’all are a blessing!
