sherri
Forum Replies Created
-
Posts
-
Duke,
So sorry to read your post. I ‘m glad you have another trail you are trying to get in to. I hope you hear soon and they let you in. You’re in my prayers.
Sherri
Matt,
WOW!, Curative not just Palliative is the miracle you have been fighting for. I know the treatments are rough and bringing you down but on those bad days just remember what it’s for. Your kids and being there for all those special times with your family, birthdays, graduations and weddings. Keep fighting.Sherri
Ibnagy99,
Sorry about your dad but this site will give you a lot of hope and valuable information. I live in Richmond also (in chesterfield). I was diagnosed in Jan of this year. The one thing I can tell you that I have learned is get second and third opinions. I have had a rough time with chemo not working and having to find a new oncologist. I just returned from MD Anderson for my first consultation with them to go into clinical trials. They didn’t put me In a trail on this trip they want my onc here to try another chemo treatment with different drugs. Below I have listed the Drs here in richmond that I dealt with.Surgeon was dr. Ralph layman
Va Cancer institute was my first oncologist but after 1st Round of chemo we parted ways
Dr. Ryan Raddin is my new oncologist now and I love him.
Dr. Shroff is my dr at MD AndersonGood luck to your dad and you. This is a crazy emotional ride because everyone is different and everyone reacts different to the treatments.
SherriMatt,
Congrats on the great news. I wish you lots of luck on the surgery next week. Celebrate and dance everydaySherri
Matt,
Sending lots of positive thoughts and prayers your way. Hope you get some positive news at Mayo.
Sherri
Andy
I am sorry to hear about your wife. You are so kind to offer help to others while having to help your wife. I was diagnosed in Dec. 2014. I am stage IV and in the middle of second chemo combo. Gem/cis didn’t work so trying something else. If this doesn’t work I will be going to MD Anderson to see what they offer. I would like to hear what they have suggested to your wife and your opinion of Anderson if you feel like sharing.This site has been so helpful to me in trying to figure out what I need to do. I send lots of prayers and good thoughts your way
Sherri
I just wanted everyone to know that I have learned another lesson in this journey. Unfortunately I was waiting for MD Anderson to see me for an evaluation and in the mean time my new onc wanted to start a palliative treatment until I could go. MDA called today to say I could come next week, then when they asked about current treatment I was told I couldn’t come until 4 cycles of this new treatment were complete. My onc is going to try and talk to the doctor at Anderson but it doesn’t seem like there is anything that will change.
I hate this Cancer, there are no directions to help you make correct decisions! All you do is stay on a roller coaster. Thought I had a good game plan just to have the roaster take off again. I think I’m just going back to work and try to stay sane. Hope this oxaliplatin/xeloda works for a while.
I wish all of you the best and thinks for the support
SherriKaren,
I’m new to this group too but I can tell you that they got me moving in the right direction. I found a new onc and he has started a new chemo treatment and has sent my biopsy slides to Foundation One to find a targetable mutation. I will also find out hopefully tomorrow when I will be going to MD Anderson to see their doctors and get other opinions. I am stage IV with my cc.Keep moving and fighting
SherriHi Karen,
I understand your confusion about ca 19-9. Mine are high and they keep telling me not to put so much into them. I do know that my gem/cis didn’t work and my cancer spread and my numbers increased. Everyone seems to have a different opinion about those numbers so I’m hoping they don’t mean we can’t still fight this fight. I have tried to stop thinking about them and put the engergy to finding a treatment that will give me more time.I know I didn’t give you answers but I wanted you to know you weren’t the only one confused about them.
Sherri
Duke,
Thanks for the suggestion on pre-de for the foundaion meds. My doctors office did handle it for me.Sherri
Hi Lee,
Thanks for sharing your husbands experience with me. I had my first chemo yesterday and I’m experiencing the cold sensation and tingling in my fingers. I will take six months of stability to hopefully caring me into being able to get into a clinical trail or anything they want to try.Finding this site has been the best thing I did. I believed my first onc and when the gem/cis didn’t work I was left on my own. This group led me to things that needed to be done and that I needed to take charge. Hoping to hear tomorrow on date I go to MD Anderson.
I hope one day to be able to help others like I was helped from this group.
Happy Easter to all
SherriHi to everybody,
I went to see Dr. Raddin today and he is going to try a different chemo on me to see if this one will help since gem/cisp did nothing. I will have IV chemo of oxaliplatin once evey cycle and will be taking two capacitance pills everyday. I will have one week off. Has anyone had this treatment?He will also request by biopsy and send it to foundation one. I am still going to Anderson but they said it could be two more weeks before I get to go. I have been without any treatment for three weeks and the way my ca19 numbers are rising I didnt want to wait on treatment anymore.
I will keep everyone updated.
SherriMatt,
Thanks for meeting with me today. You had a lot of valuable information for someone like me just starting this fight. It was a comfort to sit and talk about the emotional side an what we are fighting for and our fears.Let’s just keep the fight and hope going. I will let you know when I leave for Anderson.
Thank you
SherriGood morning to all,
I just wanted to let everyone know that my HMO approved me to go to MD Anderson. First try with no fighting or appeals. I can’t believe it. I am waiting on MD Anderson to tell me when to come.I just want to thank everyone for all the positive thoughts and good information. Since my oncologist had given me my scan results and said there was nothing else he could do, I really felt lost and alone. This board along with my family helped me get my fight back and I’ve been busy.
1. Made contact with dr. Gores at mayo clinic. He told me to have my biopsy sequenced to see if there is a targetable mutation.
2. Have applied to go to MD Anderson Cancer Center. Since I have an HMO I’m waiting for the insurance to approve. We will see about that but if denied my empoloyer is going to appeal.
3. In case I can’t go to Anderson I have located a dr. Raddin here in Richmond. Taking copies of all my reports and ct scan tomorrow and have appointment on the 31st.
4. I’m going to me Matt on Friday and get more advise and encouragement. I can’t waitNew attitude and I to will be a survivor and one day will be encouraging others.
Thanks to all
Sherri
