shonny
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Hi my sister has bone mets hers is in her thigh 16 x 12 they also will not operate she has only in her liver and thigh now gone to her spine. only given her chemo which has ceased and one lot of ray on her hip willnot do the spine. i am like you no one will give answers to questions of why cant you do this or that. my sister is 30 and has two children aged 2 and 4 they have told us there is nothing else they can do. i read this site each day to hope there is a new treatment. please let me know what they are doing for you mum.
Lauren sorry to hear about your dad my sister has this awful disease refer to my introduction. it is very overwhelming and at the moment we were told 11 months from diagnosis for her and she is only 30 like everyone says dont give up and fight ask questions etc i found too that there is not much information so i use this sight and tried to read as many peoples things that i can to see the different treatments etc. i put my sisters details of her diagnosis (eg the big words) in the search section and then read anyones blogs with similar stuff. this unfortunately for me gave me many answers to questions that were unanswered. my sister too was told pallative and i hate that word but thats what they use she just had her first wave of chemo and her liver shrunk 20% the drugs she used were listed on magic quote. she just had ray for her mets on her bone that are over 16cm and the ones in her back they wont touch. unfortunately i need to go but i iwll try and talk to you soon. hang in there keep fighting. and good luck.
hi everyone havent been on for a while have been working and taking my sister to ray treatment everyday. cause i live in the country it takes me 1 hour to get to her then 1 and half hours to get her to ray treatment for like you would all know a 10 minute appointment. but hey its got to be done. good news is she loved the concert so that was great and we had a good time. we are also having a big fundraiser on saturday for her to fly her to queensland with her kids so i hope it goes well. i feel awful not being able to read other peoples situations out there but a the moment i stuck for time with treatments work and trying to be a mum to my two little ones so if any of you read a new person with similar stuff to my sister please feel free to tell them about me. anyway must go. to all the careers i give you a big hug to all the people who are ill i pray for you.
Thank you to all who have replied and given me rays of hope. The advice is great. I am taking my sister to a concert tomorrow night and hopefully that will cheer her up. she is being so positive and thats great. after all the stats are just that. I am going to ask for second opinions though and also question why things cant be done, in the long wrong the worst that can happen is they can only say no, but you never know one might have another idea. To all of thankyou and to those that are fighting this alwful disease never give up and to the careers i send a big hug.
Thanks everyone for your replies advice and wishes. As many of you mentioned i have now joined the family and like you all its not one that you wanted to join but its one that you had to. i will think of this new family as the positive part of this bloody awful disease a place where i can vent my anger frustration questions and also the MILESTONES that my sister will achieve. I WILL NEVER STOP FIGHTING FOR HER and will search constantly for more treatment options. however i do understand that it is her disease and she needs to be in control and that i will support her with all decissions.
unfortunately i have lots of preparing to do today in the next week so i will try and pop on as much as i can unfortunately because she needs a career 24 hours a day my time is spent juggling time with her my family and work, much of which all of you would know. what i am rambling on about is please dont think i wont be reading what you write and that i wont be looking up the adivice cause i will but i may not get to write a thank you or a reply straight away but please keep the information coming. (hope that makes sense)
thanks again to you all its a wierd feeling to have connections with people on the other side of the world but its calming to know we are not alone in this time of sadness. BUT HOPE IS ALL WE HAVE AND NO ONE WILL TAKE THAT AWAY FROM ME AND I WILL HOPE FOREVER
