Talked with our other ONC dr (we have two, one closer to home and one that’s an hour away). He was much more optimistic the the other Dr and we left that visit feeling as if there is still hope. We decided to go back on the Oxaliplatin & 5FU again and deal with nueropathy for now and then possibly switch to a drug trial where they are testing AMG 386 (a bio drug) with Paclitaxel (a chemo drug). Has anyone else done this study???
This goes to show once again that 2nd opinions are vital! After talking with the first dr. we left feeling like we were out of options, but now we know we there are still options to try (or re-try) and we have hope again and we’ll continue to fight.