soimalb

Thank you Lainy,

I don’t know yet how I am doing, but I have Guy’s ashes with me at home and that is helping alot. We both believed in spirituality and that we are never wanished after our bodies have stopped functioning in material way.

So, Guy is with me and me with him. I feel him everywhere, helping me to say and do what I have to say and do here. He is guiding me always.

Thank you again,

Liliana

I am very scarred.

I don’t know what to do. 6,2 hemoglobin and no treatment for anemia what so ever.
The rest is going in good direction.

thank you, and God bless you
Liliana

Hello, everyone,

and thank you for your replies and informations.

I am very tired, because the all day i am with my Guy there, to help and watch out. Things are going better. The guys from the emergecy are amazing how good they are. Guy is treated with DALACIN (Clindamycin) for the Cellulitis:

http://en.wikipedia.org/wiki/Clindamycin

But the fluid it was coming back. So they are giving to him also Burinex for the fluid and Clexane for the Thrombosis. His apetite is back ok. The anemia is still very much there but improving.
For his cancer, Guy has a team of 6 professors, all of them in the area of gasthroenterology and hepato-billiary areas of Onchology. 3 of them i know them by name:

Pr. Dr. Van Cutsem – gastroenterology – the big boss of all – so he is the superviser on the case of my husband;

Pr. Dr. Verslype – hepatobilliary area – our doctor of choice to comunicate, thinking out of the box – love him;

Pr. Dr. Prennen – hepathology; this one is with theclinical trials mostly.

Well they did a great job with Guy until now and they are still doing.
The problem is not with them but with their assistants, wich are not comunicating everything to the professors, not putting informations in the computer and they are taking decisions without asking or informing the professors. And like that mistakes were made, medication was prescribed – like Avelox. And after making mistakes they are gone, they have finished their stage in the department and other new are comming and taking from the begining. Some of them are correct and good interested to do their job, others are there just because their mom was wanting to have a doctor in the family.

And the second thing is that, here, the cancer it is not treated multidisciplinary. At least this is what we are experienced until now. It has to take alot of effort from the pacient that they are deciding to ask the opinion of an other medical discipline. I don’t know anymore. Anyway, for my Guy i solved the problem. For others, let’s hope. I requested that my husband to be evaluated and treated multidisciplinary. And they already started – Hemathology, Endocrinology, Genetics etc. etc. How manny times i had to beg them to do it, until i wrote the request, it didn’t happened.

Ok, i hope you all are ok, people, and i would like to embrace you all – cause people like you are rare birds in the sky.

PS: About the second opinion we will have to wait, because of the anemia. Guy needs to recover first, before starting allover. But I am thinking MD Anderson endeed and also Switzerland.

Have a good time and God bless you all,

Liliana

Hi, everyone

My husband passed trough the night. UH of Leuven send it theyre ambulance this morning – God he already couldn’t get up – and he is now at the Emergency department – this guys from here are really fantastic, from the emergency. Guy has Cellulitis. Because his body was full with fluid before, the skin was making litle tinny breakes, unvisible for our eyes. And, with a low blood counts an such alot of chemo before, it was just enough for the bacterya to atack. The doctor was telling that he took it already from the hospital before.

So they told that people taking chemotherapy may have find themselves in situations like this. We arrived just in time for the treatment, cause the infection was starting to arrive in the blood.

So, i am happy now and hopefully Guy will not need skin remove. Anyway, the area affected it was reduced already at 50 % as it was when we arrived. So the antibiotic is working. They gave to him also a blood transfusion conssidering his anemia.

Just to update and to thank you for encourangement.
Thank you Lainy,
Liliana

Hi, Percy
Hi, everyone

Unfortunately, i am not in a medical field, my specializasion is in psichology – i am a shrink and shrinks are not doctors. We just had studied the Central Nervous Sistem and Psichogenetycs and Pathology as a part of Medicine field. And a bit of everything from medical affections wich can need psychological therapy.

I wrote about Avelox in particular – made by Bayer – and not about other fluroquinolones. Anyway Avelox it is also given in USA and those 8 deaths are occured in USA. Bayer had writen this letter only in EU and didn’t have the williness to write also for USA. On internet you will find alot of complains of american people wich were treated with this particular medicine and they are all trying to aware other people what this medicine did to them.

Avelox’s dangerous side effects are apearing in delaye – after 10 to 30 days after administration. At this moment, after 20 days of taking Avelox, my husband is suffering of acute kidney failure, possible liver failure. Tomorrow we are going back to the hospital, we called already, and because we are farr from Leuven, Belgium, we have to wait until then. I am dressed right now and observing my husband’s state of beeing durring his sleep and prepared to call 112 emergency, in case something is going wrong. In the mean time the Universitary Hospital of Leuven is calling me each hour to see how we are and giving instructions.

So, here, in Belgium, i will have a white night and, hopefully not a death night.

My husband is full of fluid and looking like an elephant and having short of breathing.

As medical preparation, i must tell, i had practice first aid in the oblygathory army service in comunistic Romania, where i was born – i know resuscitation, how to give treatment, trachetomy and so on and so on, i can recognise different situations of life threat. As for the fact that i know some more things without beeing in medical area of expertise, this is comming from my second job as a reporter – so i have to have knowledge, i have to investigate and i am very good on searching on internet and other information places.

Thank you very much for your reply. It is helping to speak with somebody that is taking me serious, cause here, in Belgium, nobody will listen – they are too much of thik necks. Sorry i am just in a kind of high stress right now.

If you don’t mind i’ll put this message to you also on the topic.

Thank you again Liliana

PS: Excuse my English

Here are some good websites and links:

1. http://www.apitherapy.org/

2. http://www.apitherapy.com/

3. http://www.mercola.com/article/diet/bee_pollen.htm

4. http://voices.yahoo.com/treating-anemia … 87228.html

5. http://www.livestrong.com/article/54469 … or-cancer/

Here are some good websites and links:

1. http://www.apitherapy.org/

2. http://www.apitherapy.com/

3. http://www.mercola.com/article/diet/bee_pollen.htm

4. http://voices.yahoo.com/treating-anemia-bee-pollen-5787228.html

5. http://www.livestrong.com/article/544691-bee-pollen-for-cancer/