soimalb
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Hello, everyone
For all of you, i opened this subject because, sooner or later, due the therapy of chemo or radiation, the majority of you will arrive to a severe anemia. This situation it is apearing by the wich kind of regimen of therapy you are taking and/or by cumulation in time of such powerfull stuff they are giving to you to cure you.
Severe anemia due to chemo and radiation it is a very difficult thing to treat and the most important thing is that they will have to stop to give you cure therapy. There are just a few treatments in our cases that it can be given – blood transfusion, EPO and iron – it depends how they conssider the best for you.The problem is that the supplements doesn’t really help, because our body doesn’t assimilate the products that we are taking or the food that we are eating, not us much as we need to arrive at one Hemoglobyn of at least 9.
In the case of my husband, wich is in a very poor state of anemia due to long term chemo and radiation – 2 years and 6 months – he could resist this very well until now – without too much side effects than a slight fatique – because a few “simple” things and one amasing one. We turned back to the basics and let the civilisation away for others.
I will give you this:
– we sold everything that we had and puted the money in the bank for dark days or for eventually transplant;
– we moved in a very clean and high oxygenated area in Belgium named SPA – Ardenne – wich has lots of forest, peace and mineral watter to the robinet;
– we are not buying anything anymore – since 2 years and 6 months – from the supermarkets and we are having only products from the local farmers;
– the litle house in wich we are living now it is a very simple place with garden and green space and a caw named Arabella- caw from wich we have everyday raw milk – wich you cannot find anymore in the shops for food; i make my own yogurt and cheese and everything that you can have from milk;Now, the “amasing” thing:
I took conection with a great romanian scientist in apyculture and he adwise us about the bee products: honey, pollen, queen milk and propolis.
The most powerfull it is the pollen and we had great results during the time, together with chemotherapy. It is just one condition- you have to find a producer of bee products in an notpoluted area and the pollen has to be raw and kept in the frizer. For my husband he had to take 2 tea spoons of pollen per day and keep it in the mouth until is disolved completely by the mouth juses and swolled. This is the way of taking wich my husband liked. A better and easyest way is to disolve a tea spoon in a half a glass of watter – not mineral watter but normal watter- and drinking. I asure you it is a great limonade.Bee pollen is a powerfull booster, it works greater than any medicine for anemia and imunity and it is used in Romania terithory fror more than 3000 years.
Now, my husband started to take again the pollen and he is smoodly starts to feel back on a track. We will see on wednesday the blood levels. And in a few weeks i am sure he can have treatment again.I will come back with some interesting links for you all people.
God bless youl,
LilianaDear Lainy and everyone,
In fact, i am happy that i am at home and we arrived safe and we didn’t kill us or – more important – some inocent drivers on the road back.
We, the romanians, we have alot in common with italian food, greek food, spanish food and, in general meditereanean food. So, i am so pleased to hear that you also are cooking like that. Because is the best for the healt.
just right now i am very busy to coock a very rich Minestrone soop, in plus putting some chicken pieces. When my guy wakes up, he will have a happy surprise.Now, about the treatment for anemia -blood transfusions, EPO – they say it is not working at the moment – but it worked before anyway. With the iron he is very well my Guy. On another hand, the main professor dr. explained to us that to give this treatment without the chemo together, can jeopardise his chance of curing in the future. And the reason is that, in the situation that he is now, it is better that he tries to make new blood cells by himself. Anyway he just called me and told to not be scared at all because with the food that he can eat at home and the high level of oxygen that the area where we are living is rich and also with the famous Belgian mineral watter from Spa – wich we have the luck to take it from the robynet, my husband will be back on track in a few weeks. He also called the regional hospital and medical assistance to come everyday to measure the blood and also to see his state of beeing. When the hemoglobyn will arrive to 9, my Guy will come to Leuven again and they will have allready a plan to follow further.
About what i was upsaid more is the fact that you can let a man to drive 140 kilometers in such of state. I told to him that this is unforgivable. Now, with no treatment i anderstood now but, for the other, i already made a complain to the board of the hospital.
The first nurse has to comein an hour.
So i have to prepare a bit here and i will come back with more interesting things than this story with the lack of responsability.
Thank you for your reply, see you later,
LilianaHello, God bless you
Just arrived at home with my husband – thank you Lord.
he is sleeping and i have to cook.Will come with details later. Just a quick unswer: here is Belgium and not USA, if you can understand what i mean. Will come with explanation a later. Anyway, i cannot sleep.
See you later,
LilianaHello everyone,
I am so upsaid to tell you that, here in Leuven (Belgium), they want to send my husband at home to recover, in the condition that this morning he had a Hemoglobin of 6,2. And they say it is ok. Also in the condition of not giving any treatment for anemia at home, what so ever, and also with the cnowledge that he suppose to be the driver of the car in the way to home.
My husband it is trusting them and he wants to go home. Maybe he doesn’t realise how serious and poor is his situation or maybe he is just… “selfish” – without thinking that he can cause an accident on the road? But, what about the doctors here – are they just having pumpkin seeds in the place of brain, or they just want to let him to die at home?
Or what about this “experts” here, are they simply crazy?
I don’t know what i suppose to do now?
I feel so alone and treated like i am some kind of a stupid. But i learned enough in my life and in the oblygatory army service in Romania, to know the basics of medicine and life threatening situations.
Now you can have a very good example how is going on in Belgium with taking care of the peoples health. And they are many examples like mine. But, when it suppose to have your money they are all only a smile.
Please somebody help me with an opinion, even if it can be stupid just write to me.
Thank you for your understanding.
God bless you all, Liliana
PS: maybe an interesting link for those interested in the subject of ANEMIA DUE TO CHEMOTHERAPY
http://www.oncolink.org/resources/article.cfm?c=16&s=59&ss=224&id=1009
Oh, thank you, also, Marions, thank you all, but here, i just have to sleep now.
But just another thing, did anybody from the pacients that you know, took the antibiotic named AVELOX and made by Bayer, in additional to treat a cold or coughing?
If someone had, please tell me what was the experience.
If you didn’t NEVER accept and NEVER take it. It almost killed my GUY.
I will come as soon as i can with details. It is just a warning being concerned that at one moment they will give to someone of our pacients and they will suffer like my husband did.
Ok, it is just enough for today,
Bye, bye from Belgium
LilianaOh,
Thank you, Lainy, for your quick reply. God, I always loved the americans … people of action. I am the same, no time to loose.
For short, because I am so tired now, walking kilometers per day in this Leuven hospital.
The CC it is iside the liver tubes, perihilar like they say. At the time of diagnose, the primary tumor was 17 cm large, with hepatomegaly and splenomegaly and metastasis to the hepatic lymphnodes around the liver and to the thymus. There were no metastasis to the liver or other organs then those that i mentioned. They gave to him 3 months to live, without treatment.
Now the treatment, very short: 1.Gemcitabine/Cisplatin; 2. SIRT with Yttrium 90 spheres; 3. 5-FU/Leucovorin; 4. one time FOLFOX 6.
He supported everithing magnificent I can say, considering. He had some side effects but nothing serious. Just tiredness and a bit of loss of concentration.Now, the Gem/Cis worked fantastic. No metastasis anywhere, prymary tumor reduces to 6 cm. But, i forgot to meansion a thrombose in the portal vein, but not to worry.
After, SIRT and 5-FU leucovorin didn’t work at all. More than that, some other litle tumors appeared in the liver (3 of 1 cm each of them).
In this condition, they had to start imediately FOLFOX 6 – this time under supevision and hospitalisation. It did very good. The last MRI was validated 3 days ago and it shows stability of the tumors and even a slight shrinking of all of them.
But now we are fighting with another serious thing – ANEMIA DUE TO CHEMOTHERAPHY. It is very severe – hemoglobyn today was 7,2. Thay cannot continue with chemo. When they gave him FOLFOX 6 the hemoglobin was under 9, but they did it together with blood transfusion 3 x 250 ml and one long term EPO. Now they want to send Guy at home for recovery of anemia and then an MRI at the begining of October , already programed. Now i am scared to get out from the hospital at home.
Ok i wrote already so much, i didn’t realise.
What do you think until now Lainy?Should i be scared?
I am not so easy scared and i am a powerfull and strong woman, it is just a tought.
I would like also to start a forum about ANEMIA DUE TO CHEMOTHERAPHY, because it seems that is very serious and alot of pacients with long term chemo will have, and they are not given treatment for it. And that it is very dangerous and can put in jeopardy all those wich have still chances to survive this illness.Oh, i am tired, but so happy to finally be with you people. Who can understand you the best?
Thank you for your attention,
I embrace you all with love and care, Liliana
