sparklynne

Forum Replies Created

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • in reply to: new here.. my father’s C.C. #52999
    sparklynne
    Member

    Hi all and again thank you for your support and ongoing prayers to you and yours. I am sorry it has been a while since I have responded. My father’s illness escalated and things unfortunately went in a not so good way. His liver completely failed and am sorry to report, began to effect his brain.. My dad quickly disappeared behind a sweet gentle very confused man. :( I went to spend time with my father and mother nearly daily to help give mom a break and to visit with dad and help where I could. Sadly on the morning of October 31st the angels came and took my father home while he was in my mothers arms. My heart, prayers and support goes out to each and every one of you and if I can be of any assistance.. even just a warm hug or ear to listen I am here for you all.. All my families love prayers and support to you and yours.
    Sincerely
    Lynnette

    in reply to: new here.. my father’s C.C. #52997
    sparklynne
    Member

    Thank you Katie.. I am sorry to hear that your family also has had to experience the bad bedside mannerisms and insurance difficulties.. I wish you and yours lots of love, luck and hope
    ~Lynnette

    in reply to: new here.. my father’s C.C. #52995
    sparklynne
    Member

    Thank you all so very much.. I will definitely look into the information you have given me :) As for the question about his stent, My father initially had a plastic one placed. They waited a couple of days and made the decision to have him go to a larger hospital.. we live in a small timber community between Seattle Washington and Portland Oregon.. so there are some fantastic specialists in either direction of us to help. At the larger hospital they used the ultra sound wand and determined that the plastic stent seemed to be doing its job and was not blocked.. but they found other issues and the doctor referred to it as “the tumors are bursting from the liver” and there was need for them to place a metal stent.. So they placed the metal stent somehow to bridge things… from what I understand they were puzzled because the gall bladder should have been partially tucked by the liver and it appeared in all the scans as though his gall bladder has basically fused itself to his abdominal wall. … They called a number of specialists in and even brought students in on his case as I am sure it was a learning opportunity and they seem to be a teaching hospital on rare cases.
    Thank you again for your kind words and the information you have shared. I am terribly sorry that we are all members of such a awful club of sorts but thankful for the peer interaction and my heart, my prayers, my sympathy and my biggest warmest most supportive hugs go out to all of you.

    in reply to: new here.. my father’s C.C. #52991
    sparklynne
    Member

    Thank you so much Lainy,
    Per your questions, Yes, he has had a second, third, and even fourth opinion on the matter unfortunately all with the same glum outlook. As far as the home hospice.. I should clarify on this matter.. He is still getting constant current care by a regular physician, a specialist, and a oncologist. Professional home health care nurses also check in on him at least weekly at home. I too am concerned about my mother taking on such a huge responsibility mentally and physically. I know that she loves him with all that she is and she feels as long as she is doing this then she is contributing to helping him in a situation that offers little opportunities. Very true on the liver flukes issue and how many others are being diagnosed without that connection. It begs the question why? and how come there is not more information circulated to help folks? Is there anything that can be done in the form of early screening?
    I am glad that there is at least online information such as this for families to locate in their times of need. Thank you again for your warm welcome and support

Viewing 4 posts - 1 through 4 (of 4 total)