srpssis1

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  • in reply to: Part 2 my sis has cc #65231
    srpssis1
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    Thanks so much for the care and concern. I am so blessed to have a husband that supports me helping my sister. Right now I am unemployed so that is a huge help. Lainy, thanks for the advice about the frozen dinners. That is what she asked for and I just didn’t think. I plan to ask the Doc about the B-12. And Gavin, thanks so much for the support. It is hard to be a caregiver, but I MAKE myself separate from her some days, just so I can breathe fresh air. I also have a wonderful church family that loves, supports and prays for us daily. This afternoon, because her bili is so high Becky had an ultrasound and we found out that she has GALLSTONES! wHAT ELSE! I will call the doc in the morning to set up surgery. I just pray that she has the strength to bounce back from this. Does anyone know if the gallstones could be related to the cc?
    Gonna do research tonight to see what I can find out. Thanks guys, It is a relief to put my concerns with people who know what we are going through.

    in reply to: Part 2 my sis has cc #65228
    srpssis1
    Member

    Wow, I didn’t realize that all that was still on my mind. Thanks for letting me vent. Anyway, to address your questions. Becky is on phenergan every 3 hrs.for nausea. She tried zofran, gave her diarrhea. The phenergan helps better. She had compazine in the hospital several times but she says it didn’t help. She is also on dilaudid, ativan when needed. Avelox for infection, potassium, magnesium, nexium and other things periodically. As for the drains , she goes for an ultrasound this afternoon to see if the drain is properly placed. My goal is to do whatever it takes to get her built up for chemo. She drinks a lot of water. She has boost w/ protein which she likes and fruit cups, pudding cups applesauce and occasionally she will eat a bland sandwich or a frozen dinner. Not all of any of it but something. My concern is that we are in this terrible cycle. Like today she can’t eat or drink prior to the ultra sound so by tonight she will be exhausted and have no appetite. I feel as if we are running in circles. One step forward 10 backward. I have suggested a lot of small meals for her but she forces herself to eat and wants to get it over with. Any advice to get her stronger would be great. Thanks

    in reply to: Part 2 my sis has cc #65227
    srpssis1
    Member

    Thanks so much for your concern. It means a lot to know there are people who know what we are going through. I say we because although I don’t have cc , there are days that I feel as if I do. As her caretaker I suffer when she does, I watch the numbers constantly, I try to keep her spirits up, try to get her to eat and walk around and I constantly struggle with whether to push her to move around and the next minute I look at her face and beg her to rest. I sit with her during the hospital stays, the procedures, and the doctor appts. Becky is my only sister and we are very close. We are 1 year and 1 week apart and I don’t know life without her. As the big sister I have always been the one to take of my siblings. I took care of my mama and my daddy until they died. My mother at 66, went in the hospital to have a benign tumor removed from her colon. That night she suffered massive stroke , went to rehab , was making progress when she got sick. The facility said her swollen belly was due to gas. After several days of that, I threatened to physically take her out so they got us to the hospital. Subsequently we found out she had a perforation in her bowel ,got sepis and died. I insisted on an autopsy and we found out she had pancreatic cancer . hence the stroke and perforation. My father in essence died with my mother . He fell, broke his hip almost bled out so they sewed him back up and sent him home. Dementia set in and was in a nursing home where he also got blood clot in his colon and died. I tell you all of this to let you know that this is not my first role as caretaker. I learned a few things along the way so I know that the docs will never fully inform you so you better do your research. And through all that my siblings including Becky were pretty much absent and although I have forgiven her , I guess I didn’t learn whatever it was God wanted me to learn so here I am again. My prayer is that I do this with with more grace than I did before.Enough of that.

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