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  • in reply to: dads battle has ended #50948
    staktup
    Member

    I am sorry for your loss, I lost my dad on May 19th as well. My mother wishes he would have made it out of the hospital like yours, but in the end it all just plain sucks. Stay strong and always remember how great a person he was to you.

    staktup
    Member

    After a month-long battle with all sorts of serious complications from
    his bile duct tumor surgery (ascites tat becaem infected, anastomosis bleeding, pancreatic juice leakage, friable tissues leading to more bleeding, eventual fluid imbalance, blood pressure drops & liver function deterioration) my father had passed away as an inpatient in the ICU. The medical staff were so impressed by my dad’s vigor and stamina, but in the end, it was all just too much for him to continue to endure. My mom, sister & I were there for the final 24 hours of his life. He confirmed that he was ready to go willingly and suffer no more. We do not blame the surical team nor the hospital staff; I believe my dad was an unlucky statistic of the 5-10% mortality risk and 15-20% complication risk pool. Were in the process of reviewing what went wrong but it will not bring him back. Contributions to this oranization were made in my father’s name.

    in reply to: Help- need surgical oncologist recommendations in NJ… #45499
    staktup
    Member

    Will do; 13 hour operation & he is recovering nicely i the ICU!

    in reply to: Help- need surgical oncologist recommendations in NJ… #45495
    staktup
    Member

    It’s 5:05PM. My dad went in around 7:30, 1st incision around 9. Surgeon came out around 3:45PM & said the whipple is done, but the duct leading into the liver had a lot of cancerous growth. We decided to push forward and remove the affected portion of the liver. The risk of fatal complications double, but he said it’s about 5% now vs. 2.5% as before. HR, BP, vitals are solid. Will report back.

    in reply to: Help- need surgical oncologist recommendations in NJ… #45492
    staktup
    Member

    Well, April 15th is coming near, and not for tax day. My dad has a new surgeon, Chief of Liver Transplant Sx at Weill-Cornell, Dr. Daniel Cherqui. He is a positive, nurturing physician. Dr Kluger is an assistant surgeon, with a team of fellow and residents to help.

    We are hoping ince the affected portion of the bile duct is removed, the path results will tell Dr. Cherqui if the liver or pancreas are affected. This will dictate the rest of the procedure (resections/Whipple, roux-n-y). Upon discharge, we’ll prob. do home care rehab (my mom will be taking FMLA for a month) and get him better.

    Michael Eleff will be our choice for a medical qoncologist following my father for Dr, Cherqui.

    I’ll be sure to give updates during the process, any pointers would be great!

    Regards,

    Sam

    in reply to: Help- need surgical oncologist recommendations in NJ… #45489
    staktup
    Member

    nur1954: Thanks for the suggestion.

    Well, the good news is that my dad is recovering fine. He’ll have more tests done in the next 2 days (another ERCP) to see if the pancreas is involved and diagnosed as cancerous. All this means is that he’ll prob. go back under the knife within 3 months. Frustrating.

    Anyway, thanks for the support everyone!

    in reply to: Help- need surgical oncologist recommendations in NJ… #45487
    staktup
    Member

    Thanks Lainy. So far, no one has come out & said that my dad has cancer. Only highly suspicious cells. Originally it was thought to be a bile duct tumor. No tumor evident upon exploration. You’re right, too much ambiguity…

    in reply to: Help- need surgical oncologist recommendations in NJ… #45485
    staktup
    Member

    Suron told my sister & mother that the bile duct did nt have a tuor associated as previously thought, but the pancreas was so inflamed that he had to abort any thoughts of a whipple for safety’s sake. The Chief of Liver transplant surgery was consulted & agreed. So, this means that 3 days rest, then another ERCP, and then we’ll go from there.

    He recommends that if today’s biopsy results are positive for cancer, we go for chemo there vs. closer to home. I don’t think this will be confortable for my dad. Thoughts? What’s the cycle generally like? Ultimately it’s my dad’s choice where to go for chemo, right?

    in reply to: Help- need surgical oncologist recommendations in NJ… #45482
    staktup
    Member

    Pops went in for a cholangiocarcinomectomy an hour ago at NY Presbyterian Hospital Cornell (Dr. Michael Lieberman). He may have part of his pancreas, sm. intestine, gall bladder, and part of his tomach re-sectioned. We’re hoping that it is a clean localized tumor. Keep your fingers crvossed for us!

    in reply to: Help- need surgical oncologist recommendations in NJ… #45480
    staktup
    Member

    Thank you. We just got the biopsy results, and cytology confirmed cancer cells. The plastic stent that was put in the bile duct this past weekend really helped my dad’s jaundice & bilirubin go back down.

    in reply to: Help- need surgical oncologist recommendations in NJ… #45477
    staktup
    Member

    Thanks Kim. I read about him in the NYT; he had a 37 hour surgery recently. We have an appt. with Derick Christian on Thursday who came back from a year-long fellowship in CC tumor excision in Europe & Michael Lieberman of NY Pres Weill-Cornell on Friday… Thanks Marion, I’ve been reading that thread.

    in reply to: Mom diagnosed with cholangiocarcinoma #45260
    staktup
    Member

    Hi everyone. I never thought about joining this board until today. I was in the hospital for 2.5 days caring for my jaundiced, pain-free dad. Short & swqeet- the scans and ERCP show a tumor blocking the duct, hence his high bilirubin & yellow appearance.

    Cytology will be available on Wed, but all 3 different GEs practically gave their apologetic condolences. Surgery is next for dad, and I hope we can remove it w/o finding much damage.

    cholangiocarsinoma sucks.

    How did y’all find your specialist surgeons? Any trials we could enroll him into?

    Thanks, and I am sorry for your losses too. For the survivors and thrivers, you are rock gods!

Viewing 12 posts - 1 through 12 (of 12 total)