steveuk
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I forgot to write… The surgeons said that there was no need for any chemo, any thoughts on this? As much as we don’t want to go through chemo I have read on here very different views as to whether or not this should be undertaken as an extra precaution, again we would appreciate any advise.
Thanks again Steve
Hi Evan,
I’m really sorry to hear about your mum and know exactly what you must be going through as my fiancée Liz was recently diagnosed.
She has had a second round of surgery just today at Queen Elizabeth Hospital Birmingham… They are considered one of the best in the UK and are specialist in all things liver. We couldn’t have been anymore impressed with Prof. D Mirza, his experience is second to none, and the confidence they have in what they do is so reassuring at a time when everything else is so difficult.
We have also heard good things about King’s hospital London, but don’t have first hand experience.
Steve
Hi,
Thanks again for all the relies.
Gavin, it was the churchill hospital in Oxford and the queen Elizabeth hospital in Birmingham… The surgeon at Oxford is Mr Reddy, and at Birmingham is Mr Merza.
The second opinion went well and they are of the same opinion, as Liz is young and healthy removing 75% or her liver! right love and all bile duct and some lymph nodes to test is the best chance of a cure! the biopsy following that op though will tell a bigger picture and will be scary but one day at a time and we need to op out of the way first…. Which is on 28th May.
Steve.
Hi All,
Thank you for all the replies, it does feel good to talk to people who know exactly what Liz (thought I should put a name to my fiancée) and I are going through.
pfox2100, I hope you are doing well… the similarities between what you have been and are going through is very similar to Liz, and although I feel like i have a million questions I am also struggling to ask any…. am definitely still in a state of shock from this.
Iowagirl, we live in England so we are at Oxford hospital which is a very good and renowned hospital for liver surgery etc… And also on Friday Liz has a second opinion with a guy who really is top of his field based at Birmingham Hospital which is considered one of the best if not the best. So this is all good and positive.
The reason they are operating for a second time is because where they went to give the tumour a 1cm clearance margin all the way around but it touched the bile duct so where unable to where it hit. The second op they will remove all the bile duct and 75% of the liver, now that they 100% know that it is cholangiocarcinoma. Which does also beg the question of is it Intrahepatic CC, they have not told us that it is. The gallbladder was removed purely because of the gallstones by the way.
I have been trying to read up as much as I can and actually for me that is the way that i deal with things generally…. however all the stats and prognosis does not make for good reading and although I know that each case is different this is scaring me more than anything. Liz will not look at any of the stats which is arguably the best way to deal with a situation such as this.
Thanks again to everyone.
Steve
